近乎健康:互联网使用对疾病体验及医患关系的影响

Virtually he@lthy: the impact of internet use on disease experience and the doctor-patient relationship.

作者信息

Broom Alex

机构信息

School of Healthcare, University of Leeds, United Kingdom.

出版信息

Qual Health Res. 2005 Mar;15(3):325-45. doi: 10.1177/1049732304272916.

Abstract

In the current study, the author explores the complex effects and contradictory roles of the Internet as a source of empowerment and control, and as a site of "risk management." Drawing on a study of the Internet usage of Australian men with prostate cancer, the author investigates how access to information and online support affects men's experiences of disease and, in particular, the possible implications of Internet-informed patients for the doctor-patient relationship. The data reveal that accessing information and/or support online can have a profound effect on men's experiences of prostate cancer, providing a method of taking some control over their disease and limiting inhibitions experienced in face-to-face encounters. However, it is also clear that some medical specialists view Internet-informed patients as a challenge to their power within medical encounters and, as a result, employ disciplinary strategies that reinforce traditional patient roles and alienate patients who use the Internet.

摘要

在当前的研究中,作者探讨了互联网作为一种赋权与控制来源以及“风险管理”场所所产生的复杂影响和矛盾作用。基于一项对患有前列腺癌的澳大利亚男性互联网使用情况的研究,作者调查了获取信息和在线支持如何影响男性对疾病的体验,尤其是了解互联网信息的患者对医患关系可能产生的影响。数据显示,在线获取信息和/或支持会对男性前列腺癌体验产生深远影响,提供了一种对自身疾病进行一定控制并减少面对面交流中所感受到的抑制的方法。然而,同样明显的是,一些医学专家将了解互联网信息的患者视为对他们在医疗交流中的权力的挑战,因此采用强化传统患者角色并疏远使用互联网的患者的惩戒策略。

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