Benzein Eva G, Berg Agneta C
Department of Health and Behavioural Sciences, Kalmar University, S-391 82 Kalmar, Sweden.
Palliat Med. 2005 Apr;19(3):234-40. doi: 10.1191/0269216305pm1003oa.
Hope, hopelessness and fatigue are important experiences for patients and family members in palliative care. The aim of the study was to describe the level of and relation between hope, hopelessness and fatigue in patients and family members in palliative care. Eighty-five participants completed the Herth Hope Index, Beck's Hopelessness Scale and rated their level of fatigue from none to severe. The level of hope proved to be significantly lower among the family members than among the patients. For the family members, correlations were found between hope and age (-0.358*), fatigue and hope (-0.439*), hopelessness and age (0.484**), age and fatigue (0.403**) and between hope and hopelessness (-0.723**). For the patients, correlations were found between age and hopelessness (0.555**) and between hopelessness and hope (-0.580**). Efforts to increase the experience of hope and decrease hopelessness and fatigue must include not only the patient but also the family members. (* =P <0.5, ** =P <0.01)
希望、绝望和疲惫是姑息治疗中患者及其家属的重要体验。本研究旨在描述姑息治疗中患者及其家属的希望、绝望和疲惫程度以及它们之间的关系。85名参与者完成了赫思希望指数、贝克绝望量表，并对自己从无到严重的疲惫程度进行了评分。结果显示，家属的希望水平显著低于患者。对于家属而言，希望与年龄（-0.358*）、疲惫与希望（-0.439*）、绝望与年龄（0.484**）、年龄与疲惫（0.403**）以及希望与绝望（-0.723**）之间存在相关性。对于患者而言，年龄与绝望（0.555**）以及绝望与希望（-0.580**）之间存在相关性。提高希望体验、减少绝望和疲惫的努力不仅必须包括患者，还必须包括家属。（* =P <0.5，** =P <0.01）
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