Leppert Karena, Hausmann Christopher, Dye Louise, van Oorschot Birgitt, Köhler Norbert, Schweitzer Susanne, Steinbach Kerstin, Anselm Reiner, Strauss Bernhard
Institut für Medizinische Psychologie, Universitätsklinikum Jena.
Psychother Psychosom Med Psychol. 2005 Jun;55(6):291-7. doi: 10.1055/s-2004-834748.
This study reports the degree to which terminally ill tumour patients wish to be involved in medical decisions about their care and death. In addition, the study aimed to examine euthanasia from the patient's perspective. 272 tumour patients with a life expectancy of less that 1 year took part in a face to face survey. The survey examined attitudes, beliefs and desires with respect to euthanasia, where one would like to die and who should be present as well as attitudes to advance directives. The majority of tumour patients (75 %) wanted to die at home and in the presence of family members (90 %). A multidimensional scaling analysis generated two clusters which were interpreted as self-other determination and integration-non-integration as a patient within the health system. The central theme for the tumour patients is to protect their autonomy in the decision making process at the end of their lives. Desires expressed by these tumour patients did not reflect public discussions about active, passive or indirect assisted suicide. The results demonstrate that doctors should communicate especially sensitively with tumour patients and their relatives.
本研究报告了晚期肿瘤患者希望参与有关其治疗和死亡的医疗决策的程度。此外,该研究旨在从患者的角度审视安乐死。272名预期寿命不到1年的肿瘤患者参与了一项面对面调查。该调查考察了关于安乐死的态度、信念和愿望、希望离世的地点、希望谁在场以及对预立医疗指示的态度。大多数肿瘤患者(75%)希望在家中并在家人在场的情况下离世(90%)。多维尺度分析产生了两个聚类,被解释为自我 - 他人决定以及作为医疗系统中的患者的融入 - 不融入。肿瘤患者的核心主题是在其生命末期的决策过程中保护自己的自主权。这些肿瘤患者表达的愿望并未反映关于主动、被动或间接协助自杀的公众讨论。结果表明,医生应特别敏感地与肿瘤患者及其亲属进行沟通。