Alston Bruce
Australian Law Reform Commission, G.P.O. Box 3708, Sydney, NSW 2001, Australia.
J Law Med. 2005 May;12(4):426-40.
Genetic and other medical technology makes blood, human tissue and other bodily samples an immediate and accessible source of comprehensive personal and health information about individuals. Yet, unlike medical records, bodily samples are not subject to effective privacy protection or other regulation to ensure that individuals have rights to control the collection, use and transfer of such samples. This article examines the existing coverage of privacy legislation, arguments in favour of baseline protection for bodily samples as sources of information and possible approaches to new regulation protecting individual privacy rights in bodily samples.
基因技术及其他医学技术使血液、人体组织和其他身体样本成为获取个人全面个人信息和健康信息的直接且便捷的来源。然而,与医疗记录不同,身体样本不受有效的隐私保护或其他监管,以确保个人有权控制此类样本的采集、使用和转移。本文探讨了隐私立法的现有覆盖范围、支持将身体样本作为信息来源进行基线保护的论据,以及保护身体样本中个人隐私权的新监管的可能方法。