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姑息治疗。一些组织方面的考量。

Palliative care. Some organisational considerations.

作者信息

Welshman A

机构信息

Sue Ryder Foundation, Rome, Italy.

出版信息

Minerva Anestesiol. 2005 Jul-Aug;71(7-8):439-43.

Abstract

Managing pain effectively is one of the biggest challenges in medicine, let alone when dealing with the dying patient and his family. For palliative care specialists this is a daily challenge. However, ''To cure when possible, to give comfort always'' is an empty credo if physicians don't use every weapon in the medical arsenal to relieve the suffering caused by chronic pain. It's of course the opioids: morphine, heroin, their synthetic derivatives and other narcotics, a class of medications that conjure up visions of drug addiction and narcotic squads. To say that opioids are stigmatised by such allusions is putting it mildly. An unhealthy proportion of doctors and patients alike are afraid to have anything to do with them, even in when facing their final stages of life. This is particularly so in the Mediterranean society. It is here in Italy that an effort must be made to educate both physicians and the general public, an arduous task to change a long standing belief which requires a quick cultural turn around. Those who refuse opioids because they are afraid of addiction, and the doctors who refuse to prescribe them out of fear or pure unwillingness to address an apprehensive attitude on behalf of his patient, need to be better informed. Most misconceptions about opioids have to do with terminology, because words like ''morphine, addiction, dependency'' and ''tolerance'' mean entirely different things in popular and medical parlance. Add to this the perceptions and attitudes the patient can have with this terminology which then can have a profound effect on the success or failure of a pain control programme. In fact, most people think that medication such as morphine are only for people who are dying and as a consequence is synonymous with death itself. Is this why Italian physicians are not prescribing morphine even though great efforts have been made recently by the Health Ministry to facilitate prescribing laws and costs? It is worthy of serious consideration. Another important issue faced daily by palliative care physicians is the broad number of chronic conditions which could make use of opioids. Severe cancer pain is the most obvious example of an appropriate use of opioids, but hardly the only one. The North American Chronic Pain Association of Canada (NACPAC) advocates the use of opioids for a wide range of conditions causing severe chronic pain, including lower back pain, inflammatory bowel disease, migraines, AIDS, multiple sclerosis and arthritis. Concerns regarding under treatment of chronic pain have captured the attention of patient advocacy groups, policy makers and scientific organisations. Misconceptions of opioid laws, negative social stigma and lack of valid prescribing alternatives to overcome this, together with paucity of formal provider education confound the issue. Much education needs to be done before opioids will be seen as a safe and reasonable treatment for chronic pain here in Italy.

摘要

有效管理疼痛是医学领域最大的挑战之一,更不用说在照顾临终患者及其家人时了。对于姑息治疗专家来说,这是每天都要面对的挑战。然而,如果医生不使用医学武器库中的每一种手段来缓解慢性疼痛带来的痛苦,“有时去治愈,常常去帮助,总是去安慰”就只是一句空洞的信条。当然,这里指的是阿片类药物:吗啡、海洛因、它们的合成衍生物以及其他麻醉药品,这类药物会让人联想到药物成瘾和缉毒队。说阿片类药物因这些联想而被污名化,这还是说得轻了。相当一部分医生和患者都不敢与它们有任何关联,即使是在面对生命的最后阶段。在地中海社会尤其如此。在意大利,必须努力对医生和公众进行教育,这是一项艰巨的任务,要改变长期以来的观念,需要迅速实现文化转变。那些因为害怕成瘾而拒绝使用阿片类药物的人,以及那些出于恐惧或纯粹不愿意为患者消除担忧态度而拒绝开此类药物的医生,需要了解更多信息。关于阿片类药物的大多数误解都与术语有关,因为像“吗啡、成瘾、依赖”和“耐受性”这些词在大众和医学用语中的含义完全不同。再加上患者对这些术语的认知和态度,这可能会对疼痛控制方案的成败产生深远影响。事实上,大多数人认为像吗啡这样的药物只适用于临终患者,因此它本身就等同于死亡。这是不是意大利医生即使卫生部最近大力简化了开药规定并降低了成本,却仍然不开吗啡的原因呢?这值得认真思考。姑息治疗医生每天面临的另一个重要问题是,有大量慢性疾病都可以使用阿片类药物。严重的癌症疼痛是阿片类药物合理使用的最明显例子,但绝不是唯一的例子。加拿大北美慢性疼痛协会(NACPAC)主张在多种导致严重慢性疼痛的病症中使用阿片类药物,包括腰痛、炎症性肠病、偏头痛、艾滋病、多发性硬化症和关节炎。对慢性疼痛治疗不足的担忧引起了患者权益倡导组织、政策制定者和科学组织的关注。对阿片类药物法律的误解、负面的社会污名以及缺乏有效的替代开药方案来克服这些问题,再加上正规医疗人员教育的匮乏,使问题更加复杂。在意大利,要让阿片类药物被视为慢性疼痛的安全合理治疗方法,还需要做很多教育工作。

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