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[贵州省麻风病患者生存状况研究]

[Study on the living condition of people affected by leprosy in Guizhou province].

作者信息

Mou Hong-jiang, Ke Wei, Bao Xia, Wang Ying

机构信息

Institute of Dermatology in Guizhou Provincal Center of Disease Control and Prevention, Guiyang 550002, China.

出版信息

Zhonghua Liu Xing Bing Xue Za Zhi. 2005 May;26(5):348-50.

Abstract

OBJECTIVE

To study the marriage status, labour ability, income and other living condition of people affected by leprosy, and to provide information on prevention, cure and salvation programs from the government.

METHODS

Based on the standardized national criteria and method, all registered people affected by leprosy in the whole province were asked to fill in a nationally standardized Form.

RESULTS

Out of the 13,034 cases, 91.19% were farmers and only 13.01% of the teenagers were at school. On 12,816 patients at age for marriage, there were more unmarried males than females, more living in the leprosy villages than those living outside of the leprosy village (P < 0.01). Disability rate in leprosy villages was seen more than outside of the leprosy village. Per capita average annual income for the people affected by leprosy was only half of the average individual income in the whole province and 1/4 of the individual income in the nation.

CONCLUSION

The living condition of those leprosy-affected people, particularly living in leprosy villages, called for special attention and the government should take comprehensive prevention to publicize the knowledge on leprosy to reduce fear and discrimination against them.

摘要

目的

研究麻风病患者的婚姻状况、劳动能力、收入及其他生活状况,为政府制定预防、治疗和救助方案提供信息。

方法

依据国家标准化标准和方法,要求全省所有登记在册的麻风病患者填写全国标准化表格。

结果

在13034例患者中,91.19%为农民,青少年中仅13.01%在上学。在12816名适龄结婚患者中,未婚男性多于未婚女性,居住在麻风病村的多于居住在麻风病村外的(P<0.01)。麻风病村的残疾率高于村外。麻风病患者人均年平均收入仅为全省人均收入的一半,全国人均收入的四分之一。

结论

麻风病患者,尤其是居住在麻风病村的患者的生活状况值得特别关注,政府应采取综合预防措施,宣传麻风病知识,减少对他们的恐惧和歧视。

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