Twomey John G
Clinical Genetics, College of Nursing, University of Iowa, Iowa City, IA, USA.
MCN Am J Matern Child Nurs. 2006 May-Jun;31(3):156-63. doi: 10.1097/00005721-200605000-00006.
Commentary about the ethical issues involved in the genetic testing in children (GTIC) has centered around beliefs that early testing of children when no medical benefits are anticipated should be discouraged. This article discusses the types of GTIC and the contexts of possible testing scenarios, and provides a review of the current research into the effects of such testing on children and their families. As data cannot support either substantive benefits or harms accrued after GTIC, it is recommended that the traditional ethical analysis based on principled theory be augmented by theories that reflect a family-centered ethic.
关于儿童基因检测(GTIC)所涉及伦理问题的评论主要围绕这样一种观点,即当预计没有医疗益处时,不应鼓励对儿童进行早期检测。本文讨论了儿童基因检测的类型以及可能的检测场景背景,并综述了目前关于此类检测对儿童及其家庭影响的研究。由于数据无法支持儿童基因检测后产生的实质性益处或危害,建议在基于原则性理论的传统伦理分析基础上,增加反映以家庭为中心伦理的理论。