Li Zhi-wen, Ren Ai-guo, Zhang Le, Zhu Jiang-hui, Zhang Ye-wu, Yue Yin-hua, Liu Xiu-wen, Gong Jun-ping, Li Yun, Li Zhu
Institute of Reproductive and Child Health, Peking University, Beijing 100083, China.
Zhonghua Liu Xing Bing Xue Za Zhi. 2006 Mar;27(3):208-11.
To evaluate the reliability of the birth defects surveillance system in four counties with high prevalence of birth defects (Pingding, Xiyang, Taigu and Zezhou counties) in Shanxi province, China.
One township was selected from each county as study site. The health workers chosen from township or village level were trained to visit families on the outcomes of each pregnancy who gave birth during year 2003 in the study site. The number of births and cases collected in the study were compared with that from the surveillance system. The number of births reported by surveillance system in four counties was also compared with the data from the local government. The criteria of evaluation were: 1) number of the missing report of births should < or = 5%, 2) the number of missing report on major external birth defects cases should < or = 10%. Researchers from the Peking University were responsible for examining the quality of surveillance in some terminal units of surveillance system.
The numbers of births reported in the study and from the surveillance system for four-township were 1043 and 997, respectively. 46 births were missing and the rate of misreporting for births was 4.4%. The numbers of birth defects cases reported in the study and from the surveillance system were 30 and 29, respectively. 1 case of birth defect as missed, and rate of misreporting for birth defects cases was 3.3%. The total number of births reported from surveillance was similar to that in the study in four counties, with a difference of 1.2%. Birth registry data was rather readable and special health workers responsible for surveillance work were present in all the terminal units of the surveillance system.
The misreporting of births and cases existed in the birth defects surveillance system of the four counties in Shanxi province, but were lower than the allowable criteria. The surveillance units had better registration, reporting and administration of births and birth defect cases. Hence, the quality of the data from the surveillance system in these four counties was reliable.
评估中国山西省出生缺陷高发的四个县（平定县、昔阳县、太谷县和泽州县）出生缺陷监测系统的可靠性。
从每个县选取一个乡镇作为研究地点。对从乡镇或村级挑选出的卫生工作者进行培训，让他们走访2003年在研究地点分娩的每例妊娠结局家庭。将研究中收集的出生数和病例数与监测系统的数据进行比较。还将四个县监测系统报告的出生数与当地政府的数据进行比较。评价标准为：1）出生漏报数应≤5%，2）主要体表出生缺陷病例漏报数应≤10%。北京大学的研究人员负责检查监测系统部分终端单位的监测质量。
四个乡镇研究中报告的出生数和监测系统报告的出生数分别为1043例和997例。漏报出生46例，出生漏报率为4.4%。研究中报告的出生缺陷病例数和监测系统报告的出生缺陷病例数分别为30例和29例。漏报出生缺陷病例1例，出生缺陷病例漏报率为3.3%。四个县监测系统报告的出生总数与研究中的出生总数相似，相差1.2%。出生登记数据可读性较好，监测系统的所有终端单位都有负责监测工作的专门卫生工作者。
山西省四个县的出生缺陷监测系统存在出生和病例漏报情况，但低于允许标准。监测单位对出生及出生缺陷病例有较好的登记、报告和管理。因此，这四个县监测系统的数据质量可靠。
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