Suppr超能文献

披露原始检测数据的伦理与临床实践:应对持续的争论

The ethical and clinical practice of disclosing raw test data: addressing the ongoing debate.

作者信息

Bush Shane S, Martin Thomas A

出版信息

Appl Neuropsychol. 2006;13(2):115-24. doi: 10.1207/s15324826an1302_6.

Abstract

Neuropsychologists are prone to having raw test data requested by colleagues, clients, and attorneys. Although questions of when and to whom neuropsychologists should release raw test data have been debated for years, uncertainty about how to address requests for raw test data persists. Although contradictions within and between ethical and legal guidelines exist, general bioethical principles, most ethical and professional guidelines, and federal copyright law support the responsibility of practitioners to maintain the security of neuropsychological tests, including raw test data. Neuropsychologists are best served by taking a proactive approach regarding the manner in which requests for raw test data are addressed. The purpose of this article is to provide the information necessary to make informed decisions regarding the release of raw test data; however, each neuropsychologist must ultimately choose to pursue a course of action that is simply ethically acceptable or one that is ethically preferable.

摘要

神经心理学家常常会收到同事、客户和律师索要原始测试数据的请求。尽管关于神经心理学家应在何时以及向何人发布原始测试数据的问题已经争论多年,但对于如何处理原始测试数据的请求仍存在不确定性。尽管伦理和法律准则内部以及之间存在矛盾,但一般的生物伦理原则、大多数伦理和专业准则以及联邦版权法都支持从业者有责任维护神经心理学测试(包括原始测试数据)的安全性。对于处理原始测试数据请求的方式采取积极主动的态度,对神经心理学家最为有利。本文的目的是提供必要信息,以便就原始测试数据的发布做出明智的决策;然而,每位神经心理学家最终都必须选择采取一种在伦理上仅仅可以接受的行动方案,或者一种在伦理上更可取的行动方案。

文献AI研究员

20分钟写一篇综述,助力文献阅读效率提升50倍。

立即体验

用中文搜PubMed

大模型驱动的PubMed中文搜索引擎

马上搜索

文档翻译

学术文献翻译模型,支持多种主流文档格式。

立即体验