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视力障碍对年龄相关性黄斑变性(AMD)患者使用服务和设备的影响。

Impact of visual impairment on service and device use by individuals with age-related macular degeneration (AMD).

作者信息

Schmier Jordana K, Halpern Michael T, Covert David W, Delgado Judith, Sharma Sanjay

机构信息

Exponent Inc., Alexandria, Virginia 22314, USA.

出版信息

Disabil Rehabil. 2006 Nov 15;28(21):1331-7. doi: 10.1080/09638280600621436.

Abstract

PURPOSE

To assess the patient-reported use of services, supplements, and devices among individuals with age-related macular degeneration (AMD) and evaluate the impact of visual impairment level on this use.

METHOD

Data for this study were collected using two instruments, the AMD Health and Impact Questionnaire and the Daily Living Tasks Dependent on Vision questionnaire (DLTV). Both questionnaires were mailed to members of the Macular Degeneration Partnership. The study was approved by an IRB and respondents provided consent before participating. Respondents' visual acuity (VA) was estimated using scores from the DLTV, while use of services and devices was collected from the AMD Questionnaire. De-identified data were analysed in SAS.

RESULTS

Of 803 respondents, 56% were male and the mean age was 73 years. Use of services (e.g., counseling, rehabilitation), and devices significantly increased as VA decreased. Using standard US costs, costs for services, supplements, and devices ranged from 506-1619 US dollars depending on VA.

CONCLUSION

There are substantial differences in service and device use with increased AMD severity. Delaying progression of AMD could result in considerable cost savings.

摘要

目的

评估年龄相关性黄斑变性(AMD)患者报告的服务、补充剂和设备的使用情况,并评估视力损害程度对这种使用情况的影响。

方法

本研究的数据使用两种工具收集,即AMD健康与影响问卷和视力依赖日常生活任务问卷(DLTV)。两份问卷均邮寄给黄斑变性合作组织的成员。该研究获得了机构审查委员会(IRB)的批准,受访者在参与之前提供了同意书。使用DLTV的分数估计受访者的视力(VA),而服务和设备的使用情况则从AMD问卷中收集。在SAS中对去识别化的数据进行分析。

结果

在803名受访者中,56%为男性,平均年龄为73岁。随着视力下降,服务(如咨询、康复)和设备的使用显著增加。按照美国的标准成本计算,根据视力不同,服务、补充剂和设备的成本在506 - 1619美元之间。

结论

随着AMD严重程度的增加,服务和设备的使用存在显著差异。延缓AMD的进展可能会节省大量成本。

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