Boschen Kathryn, Gargaro Judith, Gan Caron, Gerber Gary, Brandys Clare
Toronto Rehabilitation Institute, Toronto, ON, Canada.
NeuroRehabilitation. 2007;22(1):19-41.
Family caregivers of individuals with acquired brain injury (ABI) and other chronic disabilities typically experience long-term adjustment difficulties within the entire family system. Interventions to assist parents and spouses are rare, and for siblings and offspring even more so. Among the few existing interventions, only a very small number have been evaluated in any scientifically sound manner for effectiveness in alleviating stress and burden. A highly targeted literature search of family caregiver intervention studies identified 31 articles, only four of which were in brain injury, which met specific inclusion criteria. Randomized controlled trial studies of six types of family caregiver interventions were systematically assessed for their quality of design and evidence of effectiveness. The results revealed a body of literature lacking in methodological rigor. At present there is no strong research evidence supporting any specific intervention method for family caregivers of individuals with ABI or any of the other chronic condition groups surveyed, although an abundance of anecdotal, descriptive, and quasi-experimental support exists in the rehabilitation literature. This conclusion points to the need for launching new pilot studies and rigorous evaluations of caregiver intervention effectiveness, some of which are now emerging or in process in several locations across the United States.
后天性脑损伤(ABI)患者及其他慢性残疾患者的家庭护理人员通常在整个家庭系统中经历长期的适应困难。针对父母和配偶的干预措施很少见,针对兄弟姐妹和子女的则更是如此。在现有的少数干预措施中,只有极少数经过科学合理的评估,以确定其在减轻压力和负担方面的有效性。对家庭护理人员干预研究进行的高度针对性文献检索共找到31篇文章,其中只有4篇关于脑损伤的文章符合特定纳入标准。对六种家庭护理人员干预措施的随机对照试验研究进行了系统的设计质量和有效性证据评估。结果显示,相关文献在方法严谨性方面存在不足。目前,没有强有力的研究证据支持针对ABI患者或所调查的任何其他慢性病群体的家庭护理人员采用任何特定的干预方法,尽管康复文献中有大量轶事、描述性和准实验性的支持。这一结论表明有必要开展新的试点研究,并对护理人员干预效果进行严格评估,目前美国各地已有一些此类研究正在进行或处于起步阶段。