Pais-Ribeiro J, da Silva A Martins, Meneses R F, Falco C
Faculdade de Psicologia e de Ciências da Educação, Universidade do Porto, Rua Dr. Manuel Pereira da Silva, 4200-392 Porto, Portugal.
Epilepsy Behav. 2007 Aug;11(1):33-8. doi: 10.1016/j.yebeh.2007.04.010. Epub 2007 May 29.
Epilepsy is a relatively frequent chronic condition with an important impact on the health perception and quality of life (QOL) of patients. The aim of the present study was to identify variables related to health status perception and QOL in persons with epilepsy. Participants were 200 persons with epilepsy, 53.5% of whom were males. The mean age was 39.6; 95% had seizures, and 99% were taking antiepileptic medication. The self-report questionnaire administered assessed four types of variables: demographic, disease, epilepsy-specific optimistic attitude, and outcome variables. Results demonstrated that an optimistic orientation is related to better perception of physical and mental health status and better perception of QOL. The variables that best predict positive outcomes are optimistic orientation, perception of cognitive functioning, and perception of seizure control. These results question the importance attributed to seizure characteristics for everyday functioning and everyday life of individuals with epilepsy, and stress the importance of facilitating an epilepsy-specific optimistic orientation.
癫痫是一种较为常见的慢性疾病，对患者的健康认知和生活质量（QOL）有重要影响。本研究的目的是确定与癫痫患者健康状况认知和生活质量相关的变量。研究参与者为200名癫痫患者，其中53.5%为男性。平均年龄为39.6岁；95%的患者有癫痫发作，99%的患者正在服用抗癫痫药物。所采用的自填问卷评估了四类变量：人口统计学变量、疾病变量、癫痫特异性乐观态度变量和结果变量。结果表明，乐观倾向与对身心健康状况的更好认知以及对生活质量的更好认知相关。最能预测积极结果的变量是乐观倾向、认知功能认知和癫痫控制认知。这些结果对癫痫患者日常功能和日常生活中癫痫发作特征的重要性提出了质疑，并强调了促进癫痫特异性乐观倾向的重要性。
