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从一次构建姑息治疗方案的协作会议中吸取的经验教训。

Lessons learned from a collaborative meeting to construct a palliative care protocol.

作者信息

Krouse Robert S

机构信息

Southern Arizona Veterans Affairs Health Care System, and the University of Arizona College of Medicine, Tucson, Arizona 85723, USA.

出版信息

J Pain Symptom Manage. 2007 Jul;34(1 Suppl):S60-1. doi: 10.1016/j.jpainsymman.2007.04.006. Epub 2007 Jun 4.

Abstract

As the treatment of advanced illness necessitates a multidimensional and culturally sensitive approach, a conference of international leaders in affected disciplines (quality of life research, ethno-cultural variability, palliative medicine, surgical oncology, gastroenterology, major consortium research, medical ethics, and patient advocacy/cancer survivors) was organized to provide the necessary expertise and broad ethnic and racial perspectives. During the course of the two-day conference, participants first deliberated in small groups focused on specific areas of concern to palliative care research: outcome measures, ethical dilemmas, barriers, and solutions, cross-cultural issues, palliative care study implementation, and protocol development. Each group presented the results of their meetings, and the conference as a whole worked out the final details of a research protocol for malignant bowel obstruction. Lessons learned in the process of conceiving and organizing the meetings, implementing, and disseminating the results of the conference provide insight into the usefulness of this method for developing workable palliative care research methodologies.

摘要

由于晚期疾病的治疗需要采取多维度且具有文化敏感性的方法,因此组织了一场由相关学科(生活质量研究、民族文化差异、姑息医学、外科肿瘤学、胃肠病学、大型联合研究、医学伦理学以及患者权益倡导/癌症幸存者)的国际领导人参加的会议,以提供必要的专业知识以及广泛的种族和民族视角。在为期两天的会议过程中,与会者首先分成小组进行讨论,重点关注姑息治疗研究的特定关注领域:结果测量、伦理困境、障碍与解决方案、跨文化问题、姑息治疗研究的实施以及方案制定。每个小组都汇报了会议成果,会议整体共同敲定了恶性肠梗阻研究方案的最终细节。在构思和组织会议、实施会议以及传播会议成果的过程中吸取的经验教训,为深入了解这种方法在开发可行的姑息治疗研究方法方面的实用性提供了依据。

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