我们做得对吗？父母对临终关怀儿童丧亲支持服务的看法。

Are we getting it right? Parents' perceptions of hospice child bereavement support services.

作者信息

Wilkinson S, Croy P, King M, Barnes J

机构信息

Department of Mental Health Sciences, Royal Free and University College Medical School, University College London, London.

出版信息

Palliat Med. 2007 Jul;21(5):401-7. doi: 10.1177/0269216307078504.

DOI:10.1177/0269216307078504

PMID:17901099

Abstract

OBJECTIVE

To determine parents' experiences and perceptions of a support service for families with bereaved children, provided by a UK charity for cancer patients in seven hospices in the UK.

METHOD

Individual interviews with 25 purposively selected parents.

RESULTS

Parents used the service for: advice and reassurance; support for their children while they grieved; and advice on ameliorating behavioural difficulties at home and school. Non-service users did not think formalised support was necessary or had other sufficient support. Nevertheless, important to parents in both groups was that the service existed so their children's needs were being or could be addressed. Children and their parents benefited from talking to a non-family member, and being involved in social events that reduced feelings of isolation.

CONCLUSION

The hospice child bereavement service was offered as an integral part of palliative cancer care support. Future research could explore collaborative work between counsellors and other professionals.

摘要

目的

确定英国一家为癌症患者提供服务的慈善机构在英国七家临终关怀医院为失去亲人的儿童家庭提供支持服务时，家长们的经历和看法。

方法

对25名经过有目的挑选的家长进行个人访谈。

结果

家长使用该服务的目的包括：获取建议和安心感；在孩子悲伤时给予支持；以及获取有关改善孩子在家和学校行为问题的建议。未使用该服务的家长认为没有必要进行正式支持，或者他们有其他足够的支持。然而，两组家长都认为该服务的存在很重要，因为这样他们孩子的需求正在或能够得到满足。孩子及其家长受益于与非家庭成员交谈，以及参与减少孤独感的社交活动。