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调整“罕见病研究与教育(RARE)”以评估失管人群接受服务的障碍。

Adapting RARE to assess barriers to service receipt among people out of care.

作者信息

Conviser Richard, Singer Merrill, Pounds Moses Belt

机构信息

HRSA's HI/AIDS Bureau, US Department of Health and Human Services, USA.

出版信息

J Health Care Poor Underserved. 2007 Aug;18(3 Suppl):52-68. doi: 10.1353/hpu.2007.0080.

Abstract

This paper describes the components of Rapid Assessment, Response and Evaluation (RARE), developed for HIV prevention planning; the adaptation of its methods to services planning; the venues in which the use of RARE was recommended for the present Care System Assessment Demonstration Project; constraints on what projects using RARE and the system assessment model may expect to accomplish; the focus of RARE questions for the project, concerning the characteristics of PLWH not in regular primary care, the care system as PLWH not in care perceive and experience it, and characteristics of the physical and social environments in which they live; how information from RARE can contribute to the enhancement of care systems; and the types of questions that sites could ask to gather RARE information for services planning.

摘要

本文介绍了为艾滋病预防规划而开发的快速评估、应对与评价(RARE)的组成部分;其方法在服务规划中的应用调整;在当前护理系统评估示范项目中推荐使用RARE的场所;使用RARE和系统评估模型的项目在预期成果方面的限制;针对该项目的RARE问题重点,涉及未接受常规初级护理的艾滋病毒感染者的特征、未接受护理的艾滋病毒感染者所感知和体验到的护理系统,以及他们生活的物理和社会环境的特征;RARE信息如何有助于改善护理系统;以及各场所为服务规划收集RARE信息可提出的问题类型。

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