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儿童癫痫生活质量(QOLCE)问卷在评估癫痫患儿生活质量方面的实用性。

The usefulness of Quality of Life Childhood Epilepsy (QOLCE) questionnaire in evaluating the quality of life of children with epilepsy.

作者信息

Talarska D

机构信息

Department of Preventive Medicine, K. Marcinkowski University of Medical Sciences, Poznań, Poland.

出版信息

Adv Med Sci. 2007;52 Suppl 1:191-3.

Abstract

PURPOSE

Evaluation of quality of life has become a frequently used method in treatment effects supervision. Quality of Life Childhood Epilepsy (QOLCE) questionnaire, which is completed by patients' parents, has been prepared for children with epilepsy. It enables to determine the quality of life in children aged 4-18 years. The aim of the study was to show the usefulness of QOLCE questionnaire in evaluating the quality of life of children with epilepsy.

MATERIALS AND METHODS

160 epileptic children, aged 8-18 years and their parents were examined in the Chair and Department of Developmental Neurology, K. Marcinkowski University of Medical Sciences in Poznań. QOLCE questionnaire was completed by parents and "Young people and epilepsy" questionnaire was designed for children.

RESULTS

Reliability index of the complete questionnaire in own research and in the original amounted to 0.93 Cronbach alpha coefficient. Epileptic, drug-resistant children constituted 28% of the examined group. Parents of children with controlled seizures evaluated children's functioning in analyzed areas of quality of life higher.

CONCLUSIONS

  1. QOLCE questionnaire is a suitable tool to evaluate the quality of children's and adolescents' life. 2. The most significant differences in functioning of epileptic, drug-resistant patients and those with controlled seizures were observed in areas of cognitive processes and social activity.
摘要

目的

生活质量评估已成为治疗效果监测中常用的方法。针对癫痫患儿编制了由患儿家长填写的《儿童癫痫生活质量问卷》(QOLCE)。它能够确定4至18岁儿童的生活质量。本研究的目的是展示QOLCE问卷在评估癫痫患儿生活质量方面的实用性。

材料与方法

在波兹南的K.马尔钦科夫斯基医科大学发育神经学教研室对160名8至18岁的癫痫患儿及其家长进行了检查。QOLCE问卷由家长填写,为患儿设计了“青少年与癫痫”问卷。

结果

在本研究及原始研究中,完整问卷的信度指标Cronbach α系数为0.93。耐药癫痫患儿占受检组的28%。癫痫发作得到控制的患儿家长对患儿在生活质量分析领域的功能评价更高。

结论

  1. QOLCE问卷是评估儿童和青少年生活质量的合适工具。2. 在认知过程和社会活动领域,耐药癫痫患者与癫痫发作得到控制的患者在功能方面的差异最为显著。

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