Macabasco-O'Connell Aurelia, Crawford Michael H, Stotts Nancy, Stewart Anita, Froelicher Erika S
University of California, Los Angeles, CA 90095-6918, USA.
J Cardiovasc Nurs. 2008 May-Jun;23(3):223-30. doi: 10.1097/01.JCN.0000317427.21716.5f.
Self-care has been shown to be an effective strategy to decrease heart failure (HF) costs and improve patient outcomes. However, high symptom burden, overall poor health, and economic and financial concerns in socioeconomically disadvantaged populations such as those of low socioeconomic status and those who are indigent or uninsured may have difficulty performing self-care behaviors. Currently, little is known about this group and their self-care behaviors. Therefore, the purpose of this study was to describe the demographic and clinical characteristics of indigent HF patients and their performance of self-care behaviors and explore the challenges and barriers they face in managing their HF.
This was a descriptive, cross-sectional study using one-time structured interviews. Participants with HF were recruited from 3 cardiology clinics and 1 hospital. The patients were asked to answer questions regarding demographics and clinical risk factors, the Self-care of Heart Failure Index, and 3 open-ended questions regarding the challenges and barriers of managing their HF.
The sample (N = 65) was composed of 55% women, with a mean (SD) age of 59 (14), 35% were nonwhite, 86% were unemployed, and 52% were indigent. Major concerns included increasing symptoms, fear of death, lack of information, and financial challenges. Self-care was low.
Patients with low socioeconomic status and indigent HF patients face unique challenges that contribute to poor self-care. Future research is needed to explore ways to improve self-care behaviors in this population.
自我护理已被证明是一种降低心力衰竭(HF)成本并改善患者预后的有效策略。然而,社会经济弱势群体,如社会经济地位低下、贫困或未参保者,由于症状负担重、整体健康状况差以及经济和财务方面的担忧,可能难以进行自我护理行为。目前,对于这一群体及其自我护理行为知之甚少。因此,本研究的目的是描述贫困心力衰竭患者的人口统计学和临床特征、他们的自我护理行为表现,并探讨他们在管理心力衰竭过程中面临的挑战和障碍。
这是一项采用一次性结构化访谈的描述性横断面研究。从3家心脏病诊所和1家医院招募心力衰竭患者。患者被要求回答有关人口统计学和临床风险因素、心力衰竭自我护理指数的问题,以及3个关于管理心力衰竭的挑战和障碍的开放式问题。
样本(N = 65)中55%为女性,平均(标准差)年龄为59岁(14岁),35%为非白人,86%失业,52%贫困。主要担忧包括症状加重、对死亡的恐惧、信息缺乏和财务挑战。自我护理水平较低。
社会经济地位低下的患者和贫困心力衰竭患者面临着导致自我护理不佳的独特挑战。未来需要开展研究以探索改善这一人群自我护理行为的方法。