Vinchon M, Dhellemmes P
Service de neurochirurgie pédiatrique, hôpital Roger-Salengro, CHRU de Lille, rue du Professeur-Emile-Lainé, 59000 Lille, France.
Neurochirurgie. 2008 Oct;54(5):575-82. doi: 10.1016/j.neuchi.2008.07.001. Epub 2008 Aug 23.
The transition from childhood to adulthood is a difficult period for neurosurgical patients, who are at risk of interrupted follow-up, causing delayed diagnosis of complications and compromised outcome. Many of these patients harbor chronic diseases that have an impact on their adult life, may present new developments and sometimes decompensate suddenly. The authors review their experience with 601 patients treated for hydrocephalus, myelomeningocele, or tumors, and followed after their 20th birthday. Mortality, morbidity and socioprofessional outcome statistics are provided, showing the magnitude of the health problem in this population. The authors then review the obstacles to the transition from childhood to adulthood and propose possible solutions. Some problems stem from the patient's lack of information, remedied by early education. Others involve physicians, whose skills may be fragmented and who lack clinical data; this requires greater awareness of this entity, inclusion of lectures on this topic in the medical curriculum and increased clinical research in this field. Finally, obstacles in hospital organization and healthcare financing require that patient support groups and medical societies unite to lobby for improvements. The problems related to the transition from childhood to adulthood in neurosurgery is a complex one, requiring all participants to be involved in the possible solutions. This endeavor should be regarded as an integral part of the duties of both pediatric and adult neurosurgeons.
从童年到成年的过渡对神经外科患者来说是一个艰难的时期,他们面临随访中断的风险,这会导致并发症的诊断延迟和预后受损。这些患者中的许多人患有慢性疾病,这些疾病会影响他们的成年生活,可能会出现新的进展,有时还会突然失代偿。作者回顾了他们对601例接受脑积水、脊髓脊膜膨出或肿瘤治疗且在20岁生日后接受随访的患者的经验。提供了死亡率、发病率和社会职业结局统计数据,显示了这一人群健康问题的严重程度。作者随后回顾了从童年到成年过渡的障碍,并提出了可能的解决方案。一些问题源于患者缺乏信息,可通过早期教育加以纠正。其他问题涉及医生,他们的技能可能参差不齐,且缺乏临床数据;这需要提高对这一群体的认识,在医学课程中纳入关于这一主题的讲座,并增加该领域的临床研究。最后,医院组织和医疗保健融资方面的障碍要求患者支持团体和医学协会联合起来游说进行改进。神经外科领域中与从童年到成年过渡相关的问题是一个复杂的问题,需要所有参与者共同参与可能的解决方案。这一努力应被视为儿科和成人神经外科医生职责的一个组成部分。