McCabe Marita P, Roberts Candice, Firth Lucy
School of Psychology, Deakin University, Melbourne, Victoria, Australia.
Nurs Health Sci. 2008 Sep;10(3):209-15. doi: 10.1111/j.1442-2018.2008.00399.x.
The current study investigated the types of support networks and services accessed by people with progressive neurological illness, as well as the assessment of the usefulness of these services. The participants were 25 people with multiple sclerosis, 15 people with motor neurone disease, 23 people with Parkinson's disease, and six people with Huntington's disease. Twenty-eight professionals who worked with people with these illnesses and 41 carers of people with these illnesses also were interviewed. The results demonstrate that all of the groups of respondents indicated a strong need for basic services (e.g. home help), as well as specialized services (e.g. support groups). These two services also were identified as the most useful services by all of the groups of respondents. The similarities and differences between the groups, as well as the patients and carers, are examined. These findings demonstrate the importance of providing basic services for people with progressive neurological illnesses.
当前的研究调查了患有进行性神经疾病的人所使用的支持网络和服务的类型,以及对这些服务有用性的评估。参与者包括25名多发性硬化症患者、15名运动神经元疾病患者、23名帕金森病患者和6名亨廷顿舞蹈症患者。另外还采访了28名从事这些疾病患者护理工作的专业人员以及41名这些疾病患者的护理人员。结果表明,所有受访者群体都表示强烈需要基本服务(如家庭帮助)以及专门服务(如支持小组)。这两种服务也被所有受访者群体认定为最有用的服务。研究还考察了不同患者群体之间以及患者与护理人员之间的异同。这些研究结果表明了为患有进行性神经疾病的人提供基本服务的重要性。