Hay M Cameron, Strathmann Cynthia, Lieber Eli, Wick Kimberly, Giesser Barbara
Department of Anthropology, Miami University, Oxford, OH 45056, USA.
Neurologist. 2008 Nov;14(6):374-81. doi: 10.1097/NRL.0b013e31817709bb.
The online information seeking of multiple sclerosis (MS) patients, their reasons for doing so, and its importance for physician-patient communication have not been described.
Patients (n = 61) presenting for the first time at an MS clinic from December 2003 to July 2005 were interviewed pre- and postappointment and administered standard measures of pain and health quality of life. Consultations were audio recorded. Quantitative data were analyzed in light of qualitative data.
Eighty-two percent of patients reported gathering medical information online before their first appointment; 36% discussed this information with their physician. Qualitative reasons for Internet information seeking and for not communicating it show some signs of wariness of health care potentially leading to nonadherence.
Most MS patients are informed by online information, but are unlikely to discuss that research with physicians for reasons that may have implications for patient adherence.
多发性硬化症（MS）患者的在线信息搜索行为、其搜索原因以及对医患沟通的重要性尚未得到描述。
对2003年12月至2005年7月首次到MS诊所就诊的患者（n = 61）在预约前后进行访谈，并对疼痛和健康生活质量进行标准测量。会诊过程进行了录音。定量数据结合定性数据进行分析。
82%的患者报告在首次预约前在网上收集医学信息；36%的患者与医生讨论了这些信息。搜索互联网信息以及不与医生交流的定性原因显示出一些对医疗保健的警惕迹象，这可能导致不依从。
大多数MS患者通过在线信息了解情况，但不太可能因可能影响患者依从性的原因与医生讨论这些研究。
