Astin Felicity, Closs S José, McLenachan Jim, Hunter Stacey, Priestley Claire
School of Healthcare, Baines Wing, The University of Leeds, UK.
J Adv Nurs. 2009 Jan;65(1):72-83. doi: 10.1111/j.1365-2648.2008.04836.x. Epub 2008 Nov 14.
This paper is a report of a study to explore patients' experiences of primary angioplasty and assess their illness perceptions during early recovery.
Primary angioplasty is recognized as the gold standard treatment for patients with ST elevation myocardial infarction, yet little is known about patients' experiences of this treatment. Recent policy change has emphasized the need for clinical practice to be more patient-centred. One way to achieve this is to understand patients' experiences of treatment better.
A mixed methods exploratory study was carried out in 2006-2007 with a purposive sample of 29 patients. Data were collected 3-12 days after hospital discharge using (a) semi-structured interviews to explore participants' experiences and (b) The Illness Perception Questionnaire to evaluate illness perceptions. Interview data were analysed using the Framework approach. Questionnaire data were used to inform the qualitative findings.
Participants were very positive about their treatment but experienced considerable emotional shock, which was exacerbated by the speed with which events occurred. Patients' experiences were characterized by a mismatch between their expectations and reality. Questionnaire data supported the notion that they experienced difficulty in 'making sense' of their condition in a coherent way. They tended to see their condition as 'acute' rather than 'chronic' and their treatment as curative.
Patient education should include focused discussions addressing the 'mismatches' that may occur between their expectations and reality. In this way, a more coherent understanding can be promoted, with greater awareness of heart disease as a long-term condition requiring ongoing self-management.
本文报告一项研究,旨在探究患者接受直接血管成形术的体验,并评估其早期康复期间的疾病认知。
直接血管成形术被公认为是ST段抬高型心肌梗死患者的金标准治疗方法,但对于患者接受该治疗的体验知之甚少。近期的政策变化强调临床实践需要更加以患者为中心。实现这一目标的一种方法是更好地了解患者的治疗体验。
2006年至2007年开展了一项混合方法探索性研究,采用目的抽样法选取了29名患者。在出院后3至12天收集数据,方法包括:(a)进行半结构式访谈以探究参与者的体验;(b)使用疾病认知问卷评估疾病认知。访谈数据采用框架分析法进行分析。问卷数据用于为定性研究结果提供信息。
参与者对其治疗非常满意,但经历了相当大的情绪冲击,而事件发生的速度加剧了这种冲击。患者的体验特点是期望与现实之间存在差距。问卷数据支持了这样一种观点,即他们难以以连贯的方式“理解”自己的病情。他们倾向于将自己的病情视为“急性”而非“慢性”,并将治疗视为治愈性的。
患者教育应包括针对性的讨论,解决他们期望与现实之间可能出现的“差距”。通过这种方式,可以促进更连贯的理解,提高对心脏病作为一种需要持续自我管理的长期疾病的认识。