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台湾女性生育极低体重早产儿的经历:一项扎根理论研究。

Taiwanese women's experiences of becoming a mother to a very-low-birth-weight preterm infant: a grounded theory study.

作者信息

Lee Shu-Nu Chang, Long Ann, Boore Jennifer

机构信息

Department of Healthcare Administration, Asia University, 500 Liufeng Road, Wufeng, Taichung 41354, Taiwan.

出版信息

Int J Nurs Stud. 2009 Mar;46(3):326-36. doi: 10.1016/j.ijnurstu.2008.10.004. Epub 2008 Dec 16.

Abstract

BACKGROUND

Significant improvements have occurred in the survival rates of small preterm infants. As more infants survive their preterm birth, the number of parents associated with this experience has also increased. Clearly, the birth of very-low-birth-weight (VLBW) preterm infants poses considerable challenges for all mothers. These challenges are further compounded in Taiwan, where women are traditionally required to practise the cultural ritual (Zuo Yue Zi) which includes confinement to the house with a special balanced diet for the first month postnatally. Moreover, there is a deficit of information on mothers' experiences when their preterm infants are in neonatal intensive care units (NICUs).

AIMS

The aim of this study was to explore Taiwanese mothers' (n=26) parenting experiences when their preterm infants were in NICUs.

DESIGN

A qualitative research approach, grounded theory, was used to explore the mothers' lived reality of these experiences.

METHODS

In-depth interviews and participant observations were conducted to gain insight into the experience of parenting.

FINDINGS

A theoretical model was formulated from the findings delineating Taiwanese mothers' parenting experiences during their preterm infants stay in hospital. The findings indicated that the preterm birth, together with the admission of their infants to a NICU, presented mothers with an unexpected crisis. The particular cultural postnatal ritual posed this group of Taiwanese mothers with an additional difficulty in establishing physical interactions. However, the Taiwanese mothers created alternative channels of contact with their hospitalised infants using emotional connections, while the physical interactions were certainly limited. Despite all the difficulties this group of Taiwanese mothers faced and resolved, they all gradually captured and embraced the parenting role. The finding of this study further indicated that the support the mothers received from the healthcare professionals and the social networks the mothers made helped to create the connections that developed between the mothers and infants, making their journey towards parenthood possible.

CONCLUSION

The theoretical model developed in this study is the first of its kind to contribute to the field of neonatal nursing in Taiwan. This would help Taiwanese women come to terms with becoming mothers of VLBW infants and subsequently enhance their parenting role.

摘要

背景

小早产儿的存活率有了显著提高。随着越来越多的婴儿早产存活,经历这一过程的父母数量也有所增加。显然,极低出生体重(VLBW)早产儿的出生给所有母亲带来了相当大的挑战。在台湾,这些挑战更加复杂,传统上女性需要遵循文化习俗(坐月子),包括产后第一个月足不出户并食用特殊的均衡饮食。此外,关于母亲在早产儿入住新生儿重症监护病房(NICU)期间的经历,相关信息匮乏。

目的

本研究的目的是探讨台湾母亲(n = 26)在其早产儿入住NICU期间的育儿经历。

设计

采用定性研究方法,即扎根理论,来探究母亲们这些经历的生活现实。

方法

进行深入访谈和参与观察,以深入了解育儿经历。

结果

根据研究结果构建了一个理论模型,描绘了台湾母亲在早产儿住院期间的育儿经历。结果表明,早产以及婴儿入住NICU给母亲们带来了意想不到的危机。这种特殊的产后文化习俗给这群台湾母亲在建立身体互动方面带来了额外困难。然而,台湾母亲们利用情感联系创造了与住院婴儿接触的替代渠道,而身体互动当然受到限制。尽管这群台湾母亲面临并解决了所有困难,但她们都逐渐承担并接受了育儿角色。本研究结果还表明,母亲们从医护人员那里得到的支持以及她们建立的社会网络,有助于在母亲和婴儿之间建立联系,使她们走向为人父母的旅程成为可能。

结论

本研究中开发的理论模型是台湾新生儿护理领域的首个此类模型。这将有助于台湾女性接受成为极低出生体重婴儿母亲的现实,并随后增强她们的育儿角色。

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