Mioshi Eneida, Bristow Matt, Cook Rachel, Hodges John R
Prince of Wales Medical Research Institute, N.S.W., Australia.
Dement Geriatr Cogn Disord. 2009;27(1):76-81. doi: 10.1159/000193626. Epub 2009 Jan 21.
Frontotemporal dementia (FTD) has devastating effects on patients and caregivers, yet the factors underlying caregiver stress are poorly understood.
108 caregivers (79 = FTD, 29 = Alzheimer's disease) participated in a postal survey. Self-report measures of perceived stress, depression, social networks, as well as patient-based measures of behaviour change and activities of daily living were completed.
Depression was a cardinal feature in FTD caregivers, and it accounted for more than 58% of stress scores. Both depression and stress were significantly higher than in AD. Neither the severity of behaviour changes nor functional disability explained caregiver stress.
Caregiver stress is a multidimensional construct, and FTD caregivers should receive more support than currently available. Depression plays a key role in coping ability.
额颞叶痴呆（FTD）对患者及其照料者具有毁灭性影响，但照料者压力背后的因素却知之甚少。
108名照料者（79名FTD患者的照料者，29名阿尔茨海默病患者的照料者）参与了一项邮寄调查。完成了关于感知压力、抑郁、社交网络的自我报告测量，以及基于患者的行为变化和日常生活活动测量。
抑郁是FTD照料者的主要特征，它占压力得分的58%以上。抑郁和压力均显著高于阿尔茨海默病照料者。行为变化的严重程度和功能残疾均无法解释照料者的压力。
照料者压力是一个多维度的概念，FTD照料者应获得比目前更多的支持。抑郁在应对能力中起关键作用。
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