Mikkelsen Thorbjørn, Sondergaard Jens, Sokolowski Ineta, Jensen Anders, Olesen Frede
The Research Unit for General Practice, University of Aarhus, Vennelyst Boulevard 6, Aarhus C 8000, Denmark.
Fam Pract. 2009 Jun;26(3):221-30. doi: 10.1093/fampra/cmp004. Epub 2009 Mar 5.
Studies of cancer survivors' rehabilitation needs have mostly addressed specific areas of needs, e.g. physical aspects and/or rehabilitation needs in relation to specific cancer types.
To assess cancer survivors' perceived need for physical and psychosocial rehabilitation, whether these needs have been presented to and discussed with their GP.
A survey among a cohort of cancer survivors approximately 15 months after diagnosis. The questionnaire consisted of an ad hoc questionnaire on rehabilitation needs and the two validated questionnaires, the SF-12 and the Research and Treatment of Cancer quality of life questionnaire, the QLQ C-30 version 3.
Among 534 eligible patients, we received 353 (66.1%) answers. Two-thirds of the cancer survivors had discussed physical rehabilitation needs with their GPs. Many (51%) feared cancer relapse, but they rarely presented this fear to the GP or the hospital staff. The same applied to social problems and problems within the family. Good physical and mental condition and low confidence in the GP were associated with no contact to the GP after hospital discharge.
Cancer survivors have many psychosocial rehabilitation needs and intervention should effectively target these needs. If this task is assigned to the GPs, they need to be proactive when assessing psychosocial aspects.
对癌症幸存者康复需求的研究大多集中在特定的需求领域,例如身体方面和/或与特定癌症类型相关的康复需求。
评估癌症幸存者对身体和心理社会康复的感知需求,以及这些需求是否已向其全科医生提出并与其讨论过。
在一组癌症幸存者确诊约15个月后进行一项调查。问卷包括一份关于康复需求的特设问卷以及两份经过验证的问卷,即SF-12和癌症研究与治疗生活质量问卷QLQ C-30第3版。
在534名符合条件的患者中,我们收到了353份(66.1%)回复。三分之二的癌症幸存者与他们的全科医生讨论过身体康复需求。许多人(51%)担心癌症复发,但他们很少将这种担忧告知全科医生或医院工作人员。社会问题和家庭问题也是如此。身体和精神状况良好以及对全科医生信心不足与出院后未与全科医生联系有关。
癌症幸存者有许多心理社会康复需求,干预措施应有效针对这些需求。如果将这项任务交给全科医生,他们在评估心理社会方面时需要积极主动。