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“别告诉她她在临终关怀病房”:为隐瞒医疗信息的家庭提供的伦理与宗教关怀

"Don't tell her she's on hospice": ethics and pastoral care for families who withhold medical information.

作者信息

Gentry Jerry

出版信息

J Pastoral Care Counsel. 2008;62(5 Suppl):421-6. doi: 10.1177/15423050080620S501.

Abstract

When family members enroll a patient in hospice, they sometimes request that the patient not be told of the diagnosis and their enrollment in hospice--usually so the patient won't be sad. In these situations, hospice staff face an ethical dilemma involving a patient's right to full disclosure. A discussion of this issue at an ethics committee session, chaired by the author of this article, brought to light many personal dynamics associated with these situations, and the discussion is used by the author to draw conclusions about pastoral care for these patients and families. Several responses from colleagues follow.

摘要

当家庭成员为患者登记临终关怀服务时,他们有时会要求不告知患者诊断结果以及其已登记接受临终关怀服务——通常是为了不让患者难过。在这些情况下,临终关怀工作人员面临着一个涉及患者知情权的伦理困境。在由本文作者主持的伦理委员会会议上,对这个问题的讨论揭示了与这些情况相关的许多个人因素,作者利用这次讨论得出了关于为这些患者及其家属提供牧师关怀的结论。以下是几位同事的一些回应。

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