直接面向消费者的基因检测与健康政策：最坏的情况会发生吗？ - Suppr

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超能文献

Direct-to-consumer genetics and health policy: a worst-case scenario?

作者信息

Caulfield Timothy

机构信息

Faculty of Law and School of Public Health, Health Law Institute, Law Centre, University of Alberta, Edmonton AB.

出版信息

Am J Bioeth. 2009;9(6-7):48-50. doi: 10.1080/15265160902918770.

DOI:10.1080/15265160902918770

PMID:19998115

Abstract

摘要

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Direct-to-consumer genetics and health policy: a worst-case scenario?

作者信息

Caulfield Timothy

机构信息

Faculty of Law and School of Public Health, Health Law Institute, Law Centre, University of Alberta, Edmonton AB.

出版信息

Am J Bioeth. 2009;9(6-7):48-50. doi: 10.1080/15265160902918770.

DOI:10.1080/15265160902918770

PMID:19998115

Abstract

摘要

相似文献

Direct-to-consumer genetics and health policy: a worst-case scenario?

Am J Bioeth. 2009;9(6-7):48-50. doi: 10.1080/15265160902918770.

Response to open peer commentaries on "Research 2.0: social networking and direct-to-consumer personal genomics".

Am J Bioeth. 2009;9(6-7):W1-3. doi: 10.1080/15265160902967009.

Direct-to-consumer genomics, social networking, and confidentiality.

Am J Bioeth. 2009;9(6-7):45-6. doi: 10.1080/15265160902893924.

Direct-to-consumer genomics and research ethics: should a more robust informed consent process be included?

Am J Bioeth. 2009;9(6-7):56-8. doi: 10.1080/15265160902893965.

Direct-to-consumer personal genome testing: the problem is not ignorance--it is market failure.

Am J Bioeth. 2009;9(6-7):13-5. doi: 10.1080/15265160902874411.

Personal genome testing: do you know what you are buying?

Am J Bioeth. 2009;9(6-7):11-3. doi: 10.1080/15265160902894005.

Direct-to-consumer genome-wide scans: astrologicogenomics or simple scams?

Am J Bioeth. 2009;9(6-7):54-6. doi: 10.1080/15265160902894021.

Research 2.0: social networking and direct-to-consumer (DTC) genomics.

Am J Bioeth. 2009;9(6-7):35-44. doi: 10.1080/15265160902874452.

Networking genetics, populations, and race.

Am J Bioeth. 2009;9(6-7):50-2. doi: 10.1080/15265160902893957.

Social networking and personal genomics: suggestions for optimizing the interaction.

Am J Bioeth. 2009;9(6-7):15-9. doi: 10.1080/15265160902894039.

引用本文的文献

Direct to consumer genetic testing-law and policy concerns in Ireland.

Ir J Med Sci. 2018 Aug;187(3):575-584. doi: 10.1007/s11845-017-1712-y. Epub 2017 Nov 25.

The Human Genome Project, and recent advances in personalized genomics.

Risk Manag Healthc Policy. 2015 Feb 16;8:9-20. doi: 10.2147/RMHP.S58728. eCollection 2015.

Return of individual genetic results in a high-risk sample: enthusiasm and positive behavioral change.

Genet Med. 2015 May;17(5):374-9. doi: 10.1038/gim.2014.110. Epub 2014 Aug 28.

Genetic counseling and the ethical issues around direct to consumer genetic testing.

J Genet Couns. 2012 Jun;21(3):367-73. doi: 10.1007/s10897-012-9488-8.

Navigating a research partnership between academia and industry to assess the impact of personalized genetic testing.

Genet Med. 2012 Feb;14(2):268-73. doi: 10.1038/gim.2011.59. Epub 2012 Jan 12.

Personal genome testing: test characteristics to clarify the discourse on ethical, legal and societal issues.

BMC Med Ethics. 2011 Jun 14;12:11. doi: 10.1186/1472-6939-12-11.

A survey of UK public interest in internet-based personal genome testing.

PLoS One. 2010 Oct 19;5(10):e13473. doi: 10.1371/journal.pone.0013473.