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[脑瘫患者从儿童期到成年期过渡期间的照护连续性]

[Care continuity for patients with cerebral palsy during transition from childhood to adulthood].

作者信息

Kitazumi Eiji

机构信息

National Rehabilitation Center for Disabled Children.

出版信息

Nihon Rinsho. 2010 Jan;68(1):27-32.

Abstract

Around adolescence and thereafter, many cases with severe cerebral palsy have worsening of respiration and swallowing due to worsening of deformity and other factors. Appropriate management including prone positioning, naso-pharyngeal air-way, and positive pressure breathing with mask and bag or in-ex sufflator is effective for chronic respiratory disorder. Modification of posture or food texture according to the result of video-fluorographic examination may be effective for dysphagia along with intermittent oral catheterization feeding. Gastro-esophageal reflux and stasis in duodenum get worse around this age. Gastro-jejunal feeding with hand-made catheter set is useful. Cervical myelopathy and radiculopathy may be critical in athetoid type of cerebral palsy. Pseudoseizure as expression of conversion disorder should be considered especially around this age.

摘要

在青春期及之后,许多重度脑瘫病例会因畸形加重及其他因素导致呼吸和吞咽功能恶化。包括俯卧位、鼻咽通气道以及使用面罩和气囊或吸气式复苏器进行正压通气在内的适当处理措施,对慢性呼吸障碍有效。根据视频荧光造影检查结果调整姿势或食物质地,同时间歇性经口导管喂养,可能对吞咽困难有效。胃食管反流和十二指肠淤滞在这个年龄段会加重。使用自制导管装置进行空肠喂养是有用的。在手足徐动型脑瘫中,颈髓病和神经根病可能很关键。尤其是在这个年龄段,应考虑将假性癫痫作为转换障碍的一种表现形式。

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