Griffin Joan M, Friedemann-Sánchez Greta, Hall Carmen, Phelan Sean, van Ryn Michelle
Center for Chronic Disease Outcomes Research, Minneapolis VA Medical Center, One Veterans Drive, Minneapolis, MN 55417, USA.
J Rehabil Res Dev. 2009;46(6):879-92. doi: 10.1682/jrrd.2008.08.0104.
Although research shows that caring for a family member with chronic disease or disability can cause significant distress for caregivers, it also shows that families that function well and adequately support patients can improve the quality of life and health outcomes for their ill or disabled family member. Currently, little knowledge exists about how families function and cope after a loved one has sustained polytrauma, the multiple traumatic injuries that often include traumatic brain injury (TBI). We summarize the polytrauma and TBI research about family needs during rehabilitation and recovery, describe current efforts to improve family-centered care, and detail approaches for understanding family resilience and the long-term consequences of injuries on families. We conclude with recommendations for future research in inpatient and outpatient settings where evidence has been limited for families of patients with TBI and is nonexistent for families of patients with polytrauma. Understanding many of these issues will help to better inform families of policies for benefits and resources and help researchers and clinicians plan for appropriate interventions.
尽管研究表明,照顾患有慢性疾病或残疾的家庭成员会给照顾者带来巨大困扰,但研究也表明,运作良好且能充分支持患者的家庭可以改善其患病或残疾家庭成员的生活质量和健康状况。目前,对于亲人遭受多发伤(通常包括创伤性脑损伤(TBI)在内的多种创伤性损伤)后家庭如何运作和应对,人们了解甚少。我们总结了关于康复和恢复期间家庭需求的多发伤和TBI研究,描述了当前改善以家庭为中心的护理的努力,并详细阐述了理解家庭复原力以及损伤对家庭的长期影响的方法。我们最后针对住院和门诊环境中的未来研究提出建议,在这些环境中,对于TBI患者家庭的证据有限,而对于多发伤患者家庭则不存在相关证据。了解其中许多问题将有助于更好地向家庭通报福利和资源政策,并帮助研究人员和临床医生规划适当的干预措施。