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英国囊性纤维化诊所的运动试验和训练调查。

A survey of exercise testing and training in UK cystic fibrosis clinics.

机构信息

Children's Health and Exercise Research Centre, School of Sport and Health Sciences, University of Exeter, St. Luke's Campus, Heavitree Road, Exeter, EX1 2LU, UK.

出版信息

J Cyst Fibros. 2010 Sep;9(5):302-6. doi: 10.1016/j.jcf.2010.03.004. Epub 2010 Mar 31.

Abstract

BACKGROUND

Exercise testing is a valuable prognostic tool and exercise training has many health benefits in cystic fibrosis (CF). The objective of this study was to survey the provision of exercise testing and training in UK CF clinics.

METHODS

A three-page questionnaire was used to determine the extent of, scope and importance assigned to exercise testing and training.

RESULTS

Data from returned questionnaires showed that 38.9% of paediatric and 27.8% of adult patients had performed an exercise test in the preceding 12 months, most as part of an annual review process. Pulmonary rehabilitation programmes were accessible in only 31.3% of clinics, and only 26.0% provide exercise training programmes. When assigning importance for exercise testing on a scale from 1 'not important' to 5 'very important', the mean and median respondent scores were 3.5 and 4.0, respectively, and for the importance of training were 4.0 and 4.0, respectively.

CONCLUSIONS

Despite the level of importance given to exercise testing and training by healthcare providers, exercise is underused as either an assessment tool or therapeutic intervention in the healthcare of patients with CF in the UK.

摘要

背景

运动测试是一种有价值的预后工具,运动训练对囊性纤维化(CF)患者有许多健康益处。本研究的目的是调查英国 CF 诊所提供运动测试和训练的情况。

方法

使用三页问卷来确定运动测试和训练的范围、范围和重要性。

结果

从返回的问卷中的数据显示,38.9%的儿科和 27.8%的成年患者在过去 12 个月中进行了运动测试,大多数是作为年度审查过程的一部分。只有 31.3%的诊所可以获得肺康复计划,只有 26.0%的诊所提供运动训练计划。在对运动测试的重要性进行评分(从 1“不重要”到 5“非常重要”)时,平均和中位数受访者的得分为 3.5 和 4.0,分别为 4.0 和 4.0,分别为训练的重要性。

结论

尽管医疗保健提供者对运动测试和训练的重视程度很高,但在英国 CF 患者的医疗保健中,运动作为评估工具或治疗干预措施的使用不足。

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