Center for Law and the Biosciences, Stanford University, USA.
Am J Bioeth. 2010 May;10(5):16-23. doi: 10.1080/15265161003728860.
This paper explores the notions of hope and how individual patient autonomy can trump carefully reasoned ethical concerns and policies intended to regulate stem cell transplants. We argue that the same limits of knowledge that inform arguments to restrain and regulate unproven treatments might also undermine our ability to comprehensively dismiss or condemn them. Incautiously or indiscriminately reasoned policies and attitudes may drive critical information and data underground, impel patients away from working with clinical researchers, and tread needlessly on hope, the essential motivator of patients, advocates and researchers alike. We offer recommendations to clinicians and health care providers to help balance the discourse with individuals seeking treatment while guarding against fraud, misconception, and patient harm.
本文探讨了希望的概念,以及个体患者自主权如何能够超越精心推理的伦理问题和旨在规范干细胞移植的政策。我们认为,同样的知识局限性会影响到限制和规范未经证实的治疗方法的论点,也可能削弱我们全面否定或谴责这些方法的能力。轻率或不加区分的政策和态度可能会将关键信息和数据推向地下,迫使患者远离与临床研究人员合作,并无端地破坏希望,希望是患者、倡导者和研究人员的重要动力。我们为临床医生和医疗保健提供者提供了一些建议,以帮助在保护患者免受欺诈、误解和伤害的同时,与寻求治疗的个人平衡对话。