Horsman Marylyn, Suto Melinda, Dudgeon Brian, Harris Susan R
Department of Occupational Science & Occupational Therapy, Faculty of Medicine, The University of British Columbia, Vancouver, British Columbia, Canada.
Pediatr Phys Ther. 2010 Fall;22(3):296-303. doi: 10.1097/PEP.0b013e3181eabc0f.
Research has shown that adults with cerebral palsy (CP) lose functional abilities earlier than persons who are able-bodied. Because CP is a lifespan disability, developmental therapists should be aware of these changes.
We used descriptive phenomenology to understand the unique, lived experiences of adults growing older with CP. Data were gathered through in-depth, semistructured interviews. Open-ended questions asked what it was like to age with CP, how these experiences were understood, how strategies were used to cope with changes, and what are the meanings of these experiences.
A theme, Awareness, Acceptance, and Action, emerged from the data analysis. Participants were aware that their bodies were deteriorating quicker than those of peers who are able-bodied. They developed acceptance that hastened actions toward improving their quality of life.
These findings provide insights for pediatric therapists who work with children with CP about what may be important to their clients as they grow older.
研究表明，患有脑瘫（CP）的成年人比身体健全的人更早丧失功能能力。由于脑瘫是一种终身性残疾，发育治疗师应了解这些变化。
我们采用描述性现象学来理解成年脑瘫患者独特的生活经历。通过深入的半结构化访谈收集数据。开放式问题询问了患脑瘫步入老年是怎样的体验、如何理解这些经历、如何运用策略应对变化以及这些经历的意义是什么。
数据分析得出了一个主题，即意识、接纳与行动。参与者意识到他们身体机能的衰退比身体健全的同龄人更快。他们逐渐接受这一现实，并加快采取行动来改善生活质量。
这些研究结果为治疗脑瘫儿童的儿科治疗师提供了见解，让他们了解随着这些患儿长大，哪些方面可能对他们很重要。
