Division of Pediatric Critical Care, Department of Pediatrics, University of California, San Francisco, California 94143-0106, USA.
Am J Phys Med Rehabil. 2010 Sep;89(9):765-71. doi: 10.1097/PHM.0b013e3181ec9936.
To survey pediatric residents' attitudes toward caring for children with severe disabilities.
A cross-sectional survey of residents in a university-affiliated pediatric residency program between October and December 2005. Residents were asked to complete a newly designed, 13-item survey. For each item, participants selected the degree to which they did or did not agree with a statement about disabilities or caring for children with severe disabilities.
Fifty-five (43%) of 129 eligible residents participated. Eighty-nine percent felt that caring for children with severe disabilities was as rewarding as caring for other children. Ninety-two percent felt that there is a societal responsibility to care for such children; 98% felt families of children with disabilities love their children as much as other families. Two-thirds (66%) admitted frustration related to caring for children who cannot be cured or function independently, and 71% questioned the aggressive treatment of such children. Residents in their second and third postgraduate years were more likely to question the aggressive treatment compared with their junior colleagues.
Although pediatric residents had positive attitudes toward children with severe disabilities, emotional and moral tensions did arise around their care.
调查儿科住院医师对照顾重度残疾儿童的态度。
2005 年 10 月至 12 月期间，对一所大学附属儿科住院医师培训项目中的住院医师进行的横断面调查。要求住院医师完成一项新设计的、包含 13 个项目的调查问卷。对于每个项目，参与者选择他们对关于残疾或照顾重度残疾儿童的陈述的同意程度。
在 129 名符合条件的住院医师中，有 55 名（43%）参与了调查。89%的人认为照顾重度残疾儿童与照顾其他儿童一样有价值。92%的人认为照顾这些儿童是社会的责任；98%的人认为残疾儿童的家庭与其他家庭一样爱他们的孩子。三分之二（66%）的人承认在照顾无法治愈或无法独立生活的儿童时感到沮丧，71%的人质疑对这些儿童的积极治疗。与初级同事相比，处于第二和第三年住院医师培训的住院医师更有可能质疑积极治疗。
尽管儿科住院医师对重度残疾儿童持有积极的态度，但在照顾他们时确实会产生情绪和道德上的紧张。
