The Ohio State University, Columbus, OH 43210, USA.
J Med Libr Assoc. 2011 Jan;99(1):15-22. doi: 10.3163/1536-5050.99.1.005.
The investigation provides recommendations for establishing institutional collection guidelines and policies that protect the integrity of the historical record, while upholding the privacy and confidentiality of those who are protected by Health Insurance Portability and Accountability Act (HIPAA) or professional ethical standards.
The authors completed a systematic historical investigation of the concepts of collection integrity, privacy, and confidentiality in the formal and informal legal and professional ethics literature and applied these standards to create best practices for institutional policies in these areas.
Through an in-depth examination of the historical concepts of privacy and confidentiality in the legal and professional ethics literature, the authors were able to create recommendations that would allow institutions to provide access to important, yet sensitive, materials, while complying with the standards set by HIPAA regulations and professional ethical expectations.
With thoughtful planning, it is possible to balance the integrity of and access to the historical record of sensitive documents, while supporting the privacy protections of HIPAA and professional ethical standards. Although it is theorized that collection development policies of institutions have changed due to HIPAA legislation, additional research is suggested to see how various legal interpretations have affected the integrity of the historical record in actuality.
本研究旨在为制定机构收藏指南和政策提供建议，这些指南和政策既要保护历史记录的完整性，又要维护受《健康保险流通与责任法案》（HIPAA）或专业伦理标准保护的个人的隐私和机密性。
作者在正式和非正式的法律和专业伦理文献中，对收藏完整性、隐私和机密性的概念进行了系统的历史调查，并将这些标准应用于制定这些领域的机构政策的最佳实践。
通过深入研究法律和专业伦理文献中隐私和机密性的历史概念，作者能够提出建议，使机构能够在遵守 HIPAA 法规和专业伦理期望的标准的情况下，提供对重要但敏感的材料的访问。
通过深思熟虑的规划，有可能在保护 HIPAA 和专业伦理标准的隐私保护的同时，平衡对敏感文件的历史记录的完整性和访问。尽管理论上认为机构的馆藏发展政策因 HIPAA 立法而发生了变化，但建议进行更多研究，以了解各种法律解释实际上如何影响历史记录的完整性。
