赋予民众权力：让临床试验数据为参与者所有。
Power to the people: participant ownership of clinical trial data.
机构信息
Genetic Alliance, Washington, DC 20008, USA.
出版信息
Sci Transl Med. 2011 Feb 9;3(69):69cm3. doi: 10.1126/scitranslmed.3001857.
PMID:21307299
Abstract
Participation in clinical trials is dismally low. In this age of electronic sharing of information of all sorts, trial participants can easily share clinical trial data. The benefits of participant ownership and sharing of trial data appear to outweigh the risks. Thus, the time has come to crowd-source data for diagnostic and therapy development.
摘要
参与临床试验的比例低得令人沮丧。在这个电子共享各种信息的时代，临床试验参与者可以轻松地共享临床试验数据。参与者拥有和共享试验数据的好处似乎超过了风险。因此，现在是为诊断和治疗开发众包数据的时候了。
Zotero 插件