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新兴慢性病:厄瓜多尔的女性与狼疮

Emerging chronic illness: women and lupus in Ecuador.

作者信息

Miles Ann

机构信息

Department of Anthropology, Western Michigan University, Kalamazoo, Michigan, USA.

出版信息

Health Care Women Int. 2011 Aug;32(8):651-68. doi: 10.1080/07399332.2010.529214.

Abstract

This article reports on an ethnographic investigation of the experiences of urban Ecuadorian women suffering from the chronic illness, lupus. Chronic illness is "emerging" in Ecuador, and cultural models and the health care delivery system are struggling to adapt to the increasing burdens brought by life-long illness. Based on extensive qualitative interviewing of lupus patients and doctors and participant observation, we identify three areas of concern including a weak health infrastructure and unequal access to care, gender models that increase the emotional burdens, and cultural understandings about illness and morality that add to social stress.

摘要

本文报道了一项针对患有慢性病狼疮的厄瓜多尔城市女性经历的人种志调查。慢性病在厄瓜多尔“日益凸显”,文化模式和医疗保健提供系统正在努力适应终身疾病带来的日益沉重的负担。基于对狼疮患者和医生的广泛定性访谈以及参与观察,我们确定了三个令人担忧的领域,包括薄弱的卫生基础设施和获得医疗服务的不平等、增加情感负担的性别模式,以及关于疾病和道德的文化观念,这些观念加剧了社会压力。

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