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慢性疾病患者的成长经历:社会成功与教育/职业困境。

Growing up with a chronic illness: social success, educational/vocational distress.

机构信息

Cecil B. Sheps Center for Health Services Research, Division of Health Affairs, University of North Carolina at Chapel Hill, Chapel Hill, NC 27599, USA.

出版信息

J Adolesc Health. 2011 Aug;49(2):206-12. doi: 10.1016/j.jadohealth.2010.12.001. Epub 2011 Feb 4.

Abstract

OBJECTIVES

We compared adult educational, vocational, and social outcomes among young adults with and without childhood-onset chronic illness in a nationally representative U.S. sample.

METHODS

We used data from Wave IV (2008) of the National Longitudinal Study of Adolescent Health. We compared respondents who reported childhood-onset cancer, heart disease, diabetes, or epilepsy with young adults without these chronic illnesses in terms of marriage, having children, living with parents, romantic relationship quality, educational attainment, income, and employment. Multivariate models controlled for sociodemographic factors and adult-onset chronic illness.

RESULTS

As compared with those without childhood chronic illness, respondents with childhood chronic illness had similar odds of marriage (odds ratios [OR] = .89, 95% CI: .65-1.24), having children (OR = .99, 95% CI: .70-1.42), and living with parents (OR = 1.49, 95% CI .94-2.33), and similar reports of romantic relationship quality. However, the chronic illness group had lower odds of graduating college (OR = .49, 95% CI: .31-.78) and being employed (OR = .56, 95% CI: .39-.80), and higher odds of receiving public assistance (OR = 2.13, 95% CI: 1.39-3.25), and lower mean income.

CONCLUSIONS

Young adults growing up with chronic illness succeed socially, but are at increased risk of poorer educational and vocational outcomes.

摘要

目的

我们比较了美国全国代表性样本中患有和不患有儿童期起病的慢性疾病的年轻人在成人教育、职业和社会方面的结果。

方法

我们使用了青少年健康纵向研究第四波(2008 年)的数据。我们将报告患有儿童期癌症、心脏病、糖尿病或癫痫的受访者与没有这些慢性疾病的年轻人进行比较,比较的方面包括婚姻状况、生育情况、与父母同住情况、恋爱关系质量、教育程度、收入和就业情况。多变量模型控制了社会人口因素和成人起病的慢性疾病。

结果

与没有儿童期慢性疾病的受访者相比,患有儿童期慢性疾病的受访者在婚姻(优势比 [OR] =.89,95%可信区间:.65-1.24)、生育(OR =.99,95%可信区间:.70-1.42)和与父母同住(OR = 1.49,95%可信区间:.94-2.33)方面的可能性相似,并且对恋爱关系质量的报告也相似。然而,慢性病组大学毕业的可能性较低(OR =.49,95%可信区间:.31-.78),就业的可能性也较低(OR =.56,95%可信区间:.39-.80),获得公共援助的可能性较高(OR = 2.13,95%可信区间:1.39-3.25),平均收入也较低。

结论

患有慢性疾病的年轻人在社交方面取得了成功,但在教育和职业方面的结果较差的风险增加。

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