• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

慢性疾病患者的成长经历:社会成功与教育/职业困境。

Growing up with a chronic illness: social success, educational/vocational distress.

机构信息

Cecil B. Sheps Center for Health Services Research, Division of Health Affairs, University of North Carolina at Chapel Hill, Chapel Hill, NC 27599, USA.

出版信息

J Adolesc Health. 2011 Aug;49(2):206-12. doi: 10.1016/j.jadohealth.2010.12.001. Epub 2011 Feb 4.

DOI:10.1016/j.jadohealth.2010.12.001
PMID:21783055
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3414253/
Abstract

OBJECTIVES

We compared adult educational, vocational, and social outcomes among young adults with and without childhood-onset chronic illness in a nationally representative U.S. sample.

METHODS

We used data from Wave IV (2008) of the National Longitudinal Study of Adolescent Health. We compared respondents who reported childhood-onset cancer, heart disease, diabetes, or epilepsy with young adults without these chronic illnesses in terms of marriage, having children, living with parents, romantic relationship quality, educational attainment, income, and employment. Multivariate models controlled for sociodemographic factors and adult-onset chronic illness.

RESULTS

As compared with those without childhood chronic illness, respondents with childhood chronic illness had similar odds of marriage (odds ratios [OR] = .89, 95% CI: .65-1.24), having children (OR = .99, 95% CI: .70-1.42), and living with parents (OR = 1.49, 95% CI .94-2.33), and similar reports of romantic relationship quality. However, the chronic illness group had lower odds of graduating college (OR = .49, 95% CI: .31-.78) and being employed (OR = .56, 95% CI: .39-.80), and higher odds of receiving public assistance (OR = 2.13, 95% CI: 1.39-3.25), and lower mean income.

CONCLUSIONS

Young adults growing up with chronic illness succeed socially, but are at increased risk of poorer educational and vocational outcomes.

摘要

目的

我们比较了美国全国代表性样本中患有和不患有儿童期起病的慢性疾病的年轻人在成人教育、职业和社会方面的结果。

方法

我们使用了青少年健康纵向研究第四波(2008 年)的数据。我们将报告患有儿童期癌症、心脏病、糖尿病或癫痫的受访者与没有这些慢性疾病的年轻人进行比较,比较的方面包括婚姻状况、生育情况、与父母同住情况、恋爱关系质量、教育程度、收入和就业情况。多变量模型控制了社会人口因素和成人起病的慢性疾病。

结果

与没有儿童期慢性疾病的受访者相比,患有儿童期慢性疾病的受访者在婚姻(优势比 [OR] =.89,95%可信区间:.65-1.24)、生育(OR =.99,95%可信区间:.70-1.42)和与父母同住(OR = 1.49,95%可信区间:.94-2.33)方面的可能性相似,并且对恋爱关系质量的报告也相似。然而,慢性病组大学毕业的可能性较低(OR =.49,95%可信区间:.31-.78),就业的可能性也较低(OR =.56,95%可信区间:.39-.80),获得公共援助的可能性较高(OR = 2.13,95%可信区间:1.39-3.25),平均收入也较低。

结论

患有慢性疾病的年轻人在社交方面取得了成功,但在教育和职业方面的结果较差的风险增加。

相似文献

1
Growing up with a chronic illness: social success, educational/vocational distress.慢性疾病患者的成长经历:社会成功与教育/职业困境。
J Adolesc Health. 2011 Aug;49(2):206-12. doi: 10.1016/j.jadohealth.2010.12.001. Epub 2011 Feb 4.
2
Young adult outcomes of children growing up with chronic illness: an analysis of the National Longitudinal Study of Adolescent Health.患有慢性病的儿童成年后的结局:对青少年健康全国纵向研究的分析
Arch Pediatr Adolesc Med. 2011 Mar;165(3):256-61. doi: 10.1001/archpediatrics.2010.287.
3
Long-term impact of adolescent chronic pain on young adult educational, vocational, and social outcomes.青少年慢性疼痛对青年期教育、职业和社会结局的长期影响。
Pain. 2020 Feb;161(2):439-445. doi: 10.1097/j.pain.0000000000001732.
4
Where are they now? Psychosocial, educational, and vocational outcomes after epilepsy surgery in childhood.他们现在在哪里?儿童癫痫手术后的心理社会、教育和职业结局。
Epilepsia. 2016 Apr;57(4):574-81. doi: 10.1111/epi.13327. Epub 2016 Feb 9.
5
Long-term medical, educational, and social prognoses of childhood-onset epilepsy: a population-based study in a rural district of Japan.儿童期癫痫的长期医学、教育和社会预后:日本某农村地区的一项基于人群的研究。
Brain Dev. 2000 Jun;22(4):246-55. doi: 10.1016/s0387-7604(00)00121-2.
6
Sex differences in adult outcomes by changes in weight status from adolescence to adulthood: results from Add Health.从青春期到成年期体重状况变化对成人结局的性别差异:青少年健康纵向研究的结果
Acad Pediatr. 2014 Sep-Oct;14(5):448-55. doi: 10.1016/j.acap.2014.03.016.
7
Education and employment among patients with childhood-onset epilepsy in adulthood: A population-based cohort study.成年起病的癫痫患儿的教育和就业情况:一项基于人群的队列研究。
Epilepsy Behav. 2024 Oct;159:109988. doi: 10.1016/j.yebeh.2024.109988. Epub 2024 Aug 24.
8
Predictors and course of vocational status, income, and quality of life in people with severe mental illness: a naturalistic study.严重精神疾病患者职业状况、收入及生活质量的预测因素与病程:一项自然主义研究。
Soc Sci Med. 2007 Oct;65(7):1420-9. doi: 10.1016/j.socscimed.2007.05.024. Epub 2007 Jun 20.
9
Protective connections and educational attainment among young adults with childhood-onset chronic illness.童年期起病的慢性疾病患者中青年的保护性关联与受教育程度。
J Sch Health. 2012 Aug;82(8):364-70. doi: 10.1111/j.1746-1561.2012.00710.x.
10
Educational achievement, employment, marriage, and driving in adults with childhood-onset epilepsy.成年起病癫痫患者的教育成就、就业、婚姻和驾驶。
Epilepsy Behav. 2019 Aug;97:149-153. doi: 10.1016/j.yebeh.2019.05.019. Epub 2019 Jun 25.

引用本文的文献

1
Factors of Importance for Continuing Education After Primary School in Young People With Neuromuscular Diseases-Patient-Reported Outcomes From a National Survey.神经肌肉疾病青少年小学毕业后继续教育的重要因素——一项全国性调查的患者报告结果
Int J Pediatr. 2025 May 30;2025:2604359. doi: 10.1155/ijpe/2604359. eCollection 2025.
2
Life course insights into social relationship quality: a cross-national analysis of 22 countries.对社会关系质量的生命历程洞察:对22个国家的跨国分析
Sci Rep. 2025 Apr 30;15(1):12096. doi: 10.1038/s41598-025-86246-x.
3
Sickle cell disease and adolescents' perspectives on self-care management resources.镰状细胞病与青少年对自我护理管理资源的看法。
Health Care Transit. 2023 Nov 7;1:100026. doi: 10.1016/j.hctj.2023.100026. eCollection 2023.
4
Experiences of students with chronic illness in university education in Ireland.爱尔兰大学生慢性病患者的经历。
Chronic Illn. 2025 Jun;21(2):277-290. doi: 10.1177/17423953241282246. Epub 2024 Sep 5.
5
Education and employment outcomes in pediatric chronic kidney disease.儿科慢性肾脏病的教育和就业结果。
Pediatr Nephrol. 2024 Dec;39(12):3411-3423. doi: 10.1007/s00467-024-06431-4. Epub 2024 Jun 28.
6
Parent and Provider Differences in Ratings of Mental Health and Neurodevelopmental Concerns in Children with Neurologic Disorders.家长和提供者对神经发育障碍儿童心理健康和神经发育问题的评估差异。
J Clin Psychol Med Settings. 2024 Sep;31(3):526-536. doi: 10.1007/s10880-023-09990-0. Epub 2024 Feb 24.
7
'Struggling to participate in everyday life': emerging adults' experiences of living with long-term health challenges.“难以参与日常生活”:患有长期健康挑战的青年的生活体验。
BMC Public Health. 2023 Jul 17;23(1):1368. doi: 10.1186/s12889-023-16291-6.
8
Social independence evaluation index for Japanese patients with childhood-onset chronic diseases.日本儿童期起病的慢性病患者的社会独立性评估指标
Front Pediatr. 2022 Dec 6;10:923497. doi: 10.3389/fped.2022.923497. eCollection 2022.
9
A Chronic Disease in Adolescence and Selection to an Educational Path-A Longitudinal Study.青少年时期的慢性疾病与教育路径选择——一项纵向研究。
Int J Environ Res Public Health. 2022 Nov 3;19(21):14407. doi: 10.3390/ijerph192114407.
10
Chronic Conditions and School Participation of First-Year University Students-HOUSE ULisbon Study.一年级大学生的慢性病与学校参与情况——里斯本大学HOUSE研究
Children (Basel). 2022 Sep 15;9(9):1397. doi: 10.3390/children9091397.

本文引用的文献

1
School-to-work program participation and the post-high school employment of young adults with disabilities.参与从学校到工作的项目与残疾青年高中毕业后的就业情况。
J Vocat Rehabil. 2008;29(2):117-130.
2
Young adult outcomes of children growing up with chronic illness: an analysis of the National Longitudinal Study of Adolescent Health.患有慢性病的儿童成年后的结局:对青少年健康全国纵向研究的分析
Arch Pediatr Adolesc Med. 2011 Mar;165(3):256-61. doi: 10.1001/archpediatrics.2010.287.
3
A controlled, longitudinal study of the social functioning of youth with sickle cell disease.一项对镰状细胞病青少年社会功能的对照性、纵向研究。
Pediatrics. 2010 Jun;125(6):e1453-9. doi: 10.1542/peds.2009-2996. Epub 2010 May 24.
4
Educational attainment among adult survivors of childhood cancer in Great Britain: a population-based cohort study.英国儿童癌症幸存者的成人受教育程度:一项基于人群的队列研究。
J Natl Cancer Inst. 2010 Feb 24;102(4):254-70. doi: 10.1093/jnci/djp498. Epub 2010 Jan 27.
5
Long-term outcomes of childhood cancer survivors in Sweden: a population-based study of education, employment, and income.瑞典儿童癌症幸存者的长期结局:一项基于人群的教育、就业和收入研究。
Cancer. 2010 Mar 1;116(5):1385-91. doi: 10.1002/cncr.24840.
6
Neurocognitive status in long-term survivors of childhood CNS malignancies: a report from the Childhood Cancer Survivor Study.儿童中枢神经系统恶性肿瘤长期幸存者的神经认知状况:来自儿童癌症幸存者研究的报告。
Neuropsychology. 2009 Nov;23(6):705-17. doi: 10.1037/a0016674.
7
Social outcomes in the Childhood Cancer Survivor Study cohort.儿童癌症幸存者研究队列中的社会结局
J Clin Oncol. 2009 May 10;27(14):2390-5. doi: 10.1200/JCO.2008.21.1458. Epub 2009 Feb 17.
8
Romantic relationships of emerging adult survivors of childhood cancer.儿童癌症成年幸存者的浪漫关系。
Psychooncology. 2009 Jul;18(7):767-74. doi: 10.1002/pon.1471.
9
Informal Mentoring and Young Adult Employment.非正式指导与青年就业。
Soc Sci Res. 2007 Dec;36(4):1328-1347. doi: 10.1016/j.ssresearch.2007.01.008.
10
Long-term social outcomes for children with epilepsy.癫痫患儿的长期社会结局。
Epilepsia. 2007;48 Suppl 9:3-5. doi: 10.1111/j.1528-1167.2007.01390.x.