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采用生活历程方法探究辅助沟通对成年手足关系的影响。

Using a life course approach to explore how the use of AAC impacts on adult sibling relationships.

机构信息

University of Sydney, Australia.

出版信息

Augment Altern Commun. 2011 Dec;27(4):245-55. doi: 10.3109/07434618.2011.630020.

Abstract

A life-course methodology was used to explore the relationship between four adults with moderate/severe cerebral palsy with complex communication needs who used AAC, and six of their non-disabled siblings. In-depth interview data were analyzed using a constructivist grounded-theory approach. Elder's life-course paradigm illuminated the importance of historical timing, social time, linked lives, and human agency to the development of communication strategies between siblings. Taking a life-course approach to studying issues related to individuals who use AAC assists understanding of how their family experiences and relationships change over time. This understanding is important, given the strong commitment by family members demonstrated in this study to supporting individuals who use AAC.

摘要

采用生活历程方法,探讨了 4 位使用辅助沟通的中度/重度脑瘫成年人及其 6 位非残疾兄弟姐妹之间的关系。使用建构主义扎根理论方法分析深入访谈数据。Elder 的生活历程范式阐明了历史时机、社会时间、关联生活和人类能动性对兄弟姐妹之间沟通策略发展的重要性。采用生活历程方法研究与使用辅助沟通的个体相关的问题有助于理解他们的家庭经历和关系随时间的变化。鉴于本研究中家庭成员对支持使用辅助沟通的个体表现出强烈的承诺,这种理解很重要。

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