Johansson Asa K, Sundh Valter, Wijk Helle, Grimby Agneta
Department of Geriatric Medicine, Sahlgrenska University Hospital, Göteborg, Sweden.
Am J Hosp Palliat Care. 2013 Feb;30(1):29-34. doi: 10.1177/1049909112439744. Epub 2012 Apr 10.
Close relatives of persons with dementia self-reported reactions on the Anticipatory Grief Scale (AGS), were observed by nurses (Study I), and compared with relatives of cancer patients in a study using the same methodology (Study II). Study I showed an overall stressful situation including feelings of missing and longing, inability to accept the terminal fact, preoccupation with the ill, tearfulness, sleeping problems, anger, loneliness, and a need to talk. The ability to cope was, however, reported high. Self-assessments and nurses' observations did not always converge, e.g. for the acceptance of the illness. The reactions of the relatives in the dementia and the cancer groups showed more similarities than dissimilarities. However, the higher number of responding spouses in the cancer group may have influenced the outcome.
痴呆症患者的近亲在预期悲伤量表（AGS）上自我报告了反应，护士对其进行了观察（研究I），并在一项采用相同方法的研究中与癌症患者的亲属进行了比较（研究II）。研究I显示了一种总体上的压力情境，包括思念和渴望之情、无法接受疾病终末期的事实、对患者的过度关注、流泪、睡眠问题、愤怒、孤独以及倾诉的需求。然而，报告显示应对能力较高。自我评估和护士的观察结果并非总是一致，例如在对疾病的接受程度方面。痴呆症组和癌症组亲属的反应显示出更多的相似之处而非差异。然而，癌症组中更多的配偶做出回应可能影响了结果。
