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患者对植入式心脏复律除颤器(ICD)的体验;重点关注电池更换和生命末期问题。

Patients' experiences of the implantable cardioverter defibrillator (ICD); with a focus on battery replacement and end-of-life issues.

机构信息

Department of Cardiology UHL, County Council of Östergötland, Linköping, Sweden.

出版信息

Heart Lung. 2013 May-Jun;42(3):202-7. doi: 10.1016/j.hrtlng.2012.11.006. Epub 2012 Dec 27.

Abstract

BACKGROUND

ICD deactivation at end-of-life is technically uncomplicated. However, it may present a psychological challenge to healthcare professionals, patients, and next-of-kin.

OBJECTIVE

This study explored patients' experiences of complex issues of battery replacement and deactivation of the ICD.

METHODS

Semistructured interviews were administered to 37 medically stable ICD-recipients.

RESULTS

The ICD-recipients lived with an uncertain illness trajectory, but the majority had not reflected on battery replacement or elective ICD deactivation. Healthcare professionals had rarely discussed these issues with patients. However, this was consistent with the ICD-recipients' wishes. Many patients had misconceptions about the lifesaving capacity of the ICD and the majority stated that they would not choose to deactivate the ICD, even if they knew they were terminally ill, and it meant they would receive multiple shocks.

CONCLUSION

The ICD-recipients tended not to think about end-of-life issues, which imply that many patients reach the final stages of life unaware of the option of ICD deactivation.

摘要

背景

在患者生命末期,对 ICD 进行消磁操作在技术上并不复杂。然而,这可能会对医疗保健专业人员、患者及其家属带来心理上的挑战。

目的

本研究旨在探讨患者在更换电池和 ICD 消磁方面所面临的复杂问题的体验。

方法

对 37 名病情稳定的 ICD 接受者进行了半结构化访谈。

结果

ICD 接受者患有不确定的疾病,但大多数人并未考虑更换电池或选择 ICD 消磁。医疗保健专业人员很少与患者讨论这些问题,但这与 ICD 接受者的意愿一致。许多患者对 ICD 的救生能力存在误解,大多数患者表示,即使他们知道自己患有绝症,并且这意味着他们将多次遭受电击,他们也不会选择对 ICD 进行消磁。

结论

ICD 接受者往往不会考虑生命末期的问题,这意味着许多患者在生命的最后阶段并不知道 ICD 消磁的选择。

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