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炎症性肠病患者的生活质量和时间观。

Quality of life and time perspective in inflammatory bowel disease patients.

机构信息

Laboratoire de psychologie sociale, Aix-Marseille Université, LPS EA849, 29, avenue Robert-Schuman, 13621, Aix-en-Provence cedex 1, France,

出版信息

Qual Life Res. 2013 Dec;22(10):2721-36. doi: 10.1007/s11136-013-0399-4. Epub 2013 Apr 8.

Abstract

PURPOSE

Numerous studies have shown the impact of inflammatory bowel disease (IBD) on patient quality of life (QoL), but no research has yet examined the impact of time's experience in the assessment of QoL in IBD. Our goal is to explore the links between QoL and time perspective (TP) and the role of TP as a determinant of QoL.

METHODS

Data were collected from 156 patients who completed a questionnaire comprising a generic measure (SF-12) and a specific measure (Inflammatory Bowel Disease Questionnaire) of QoL, a measure of TP (ZTPI) and a collection of socio-demographic and medical data.

RESULTS

Correlational analyses illustrated the links between TP and QoL. Regression analyses revealed that records of Past-negative and Present-hedonistic perspectives predicted QoL. Past-negative time perspective seemed to have a deleterious impact, while a Present-hedonistic time perspective predicted a better QoL, and this was irrespective of the level of severity of the disease.

CONCLUSIONS

These results suggest the importance of considering TP as a determinant of psychological QoL. They corroborate earlier findings on the relationship between TP and QoL associated with other pathologies. The past-negative register, which indicates rumination, tells us about the importance of considering the psychological experience of time in order to improve the QoL of patients.

摘要

目的

大量研究表明炎症性肠病(IBD)对患者生活质量(QoL)的影响,但尚未有研究探讨时间在 IBD 患者 QoL 评估中的作用。本研究旨在探讨 QoL 与时间观(TP)的关系以及 TP 作为 QoL 决定因素的作用。

方法

本研究共纳入 156 例患者,他们完成了一份问卷,其中包括一般健康状况量表(SF-12)和特定的炎症性肠病问卷(IBDQ)来评估 QoL,时间观量表(ZTPI)以及社会人口统计学和医疗数据。

结果

相关性分析表明了 TP 与 QoL 之间的联系。回归分析显示,过去消极和现在享乐主义时间观与 QoL 相关。过去消极时间观似乎具有有害影响,而现在享乐主义时间观则预示着更好的 QoL,且这与疾病的严重程度无关。

结论

这些结果提示我们将 TP 作为心理 QoL 的决定因素进行考虑的重要性。它们与其他疾病的 TP 和 QoL 之间的关系的早期研究结果相吻合。过去消极的记录表明了反刍思维的重要性,提示我们在改善患者的 QoL 时需要考虑时间的心理体验。

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