Tóth Katalin, Putz Miklós, Kullmann Lajos
Országos Orvosi Rehabilitációs Intézet, Gerincvelosérültek Rehabilitációs Osztálya, Budapest.
Ideggyogy Sz. 2013 Jul 30;66(7-8):242-50.
Surveyed references indicate improvement of rehabilitation outcomes if based on exploration of personal rehabilitation goals or quality of life goals. Purpose of our study is mapping of quality of life goals of persons entering rehabilitation by structured interviews, and study of applicability of the method.
Structured interviews have been performed with persons consecutively admitted for their first rehabilitation intervention, meeting inclusion criteria. World Health Organization's quality of life measure brief version and disability module served as guideline for the interviews. For study any negative effect on rehabilitation of our approach we have compared rehabilitation outcomes of consecutively admitted persons immediately before starting our study (58) and those with closed rehabilitation intervention (53). For this purpose the Functional Independence Measure was used. Finally content analysis of the interviews has been performed.
In 24 cases complications and psychological instability have prevented the inclusion, seven persons did not agree into participation in the study. Of the 71 interview participants the rehabilitation of 53 persons concluded. Their rehabilitation outcomes are better as of the control group significant difference has been measured in the social functions domain. Quality of life of included persons decreased during the rehabilitation process insignificantly, the autonomy domain showed insignificant improvement, the inclusion domain did not change. Content analysis revealed the outstanding role of the family among quality of life goals.
Reported results indicate that exploration of quality of life goals of persons in early phase of rehabilitation after spinal cord injury is feasible. The selected quality of life measure may well support the interviews.
已有参考文献表明,若基于个人康复目标或生活质量目标进行探索,康复效果会有所改善。我们研究的目的是通过结构化访谈梳理进入康复阶段患者的生活质量目标,并研究该方法的适用性。
对符合纳入标准、连续接受首次康复干预的患者进行结构化访谈。访谈以世界卫生组织生活质量简表和残疾模块为指导。为研究我们的方法对康复是否有负面影响,我们比较了在研究开始前连续入院患者(58例)和完成康复干预患者(53例)的康复效果。为此使用了功能独立性测量。最后对访谈进行了内容分析。
24例因并发症和心理不稳定未纳入,7人不同意参与研究。71名访谈参与者中,53人的康复结束。他们的康复效果优于对照组,在社会功能领域测得显著差异。纳入患者的生活质量在康复过程中略有下降,自主性领域有轻微改善,包容领域未变。内容分析揭示了家庭在生活质量目标中所起显著作用。
报告结果表明,在脊髓损伤后康复早期探索患者生活质量目标是可行的。所选生活质量测量方法可为访谈提供有力支持。