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一项关于青少年、照顾者及临床医生对偏头痛对青少年社交功能影响的认知的定性分析。

A qualitative analysis of adolescent, caregiver, and clinician perceptions of the impact of migraines on adolescents' social functioning.

作者信息

Donovan Elizabeth, Mehringer Stacey, Zeltzer Lonnie K

机构信息

Inflexxion Inc., Newton, Massachusetts.

Inflexxion Inc., Newton, Massachusetts.

出版信息

Pain Manag Nurs. 2013 Dec;14(4):e135-e141. doi: 10.1016/j.pmn.2011.09.002. Epub 2011 Nov 4.

Abstract

Migraines dramatically affect adolescents' quality of life. One area of particular importance is the impact of migraines on adolescents' social functioning. To understand the impact of migraines on adolescents' social functioning from multiple informants, we performed semistructured interviews with adolescents who have migraines, their caregivers, and clinicians who treat adolescents who have migraines. Three major themes related to social functioning were identified from the adolescent interviews: The need to be alone; lack of support from siblings; and the feeling of not being understood by others. The caregiver interviews yielded three main themes related to family functioning: that plans can change quickly; that family life revolves around helping the child with the migraine; and parents' feelings of inadequacy in helping their child. There were two main themes derived from the clinician interviews related to perception of family functioning: the importance of parental involvement; and the role of adolescents' school and social lives in migraine prevention. There are a number of unmet needs among adolescents with recurrent migraine and their families. Interviews with adolescents, caregivers, and clinicians suggest a number of areas for intervention.

摘要

偏头痛严重影响青少年的生活质量。一个特别重要的方面是偏头痛对青少年社交功能的影响。为了从多个信息提供者的角度了解偏头痛对青少年社交功能的影响,我们对患有偏头痛的青少年、他们的照顾者以及治疗患有偏头痛青少年的临床医生进行了半结构化访谈。从青少年访谈中确定了与社交功能相关的三个主要主题:需要独处;缺乏兄弟姐妹的支持;以及感觉不被他人理解。照顾者访谈产生了与家庭功能相关的三个主要主题:计划可能迅速改变;家庭生活围绕着帮助患有偏头痛的孩子展开;以及父母在帮助孩子方面的力不从心感。从临床医生访谈中得出了与对家庭功能的看法相关的两个主要主题:父母参与的重要性;以及青少年的学校和社交生活在偏头痛预防中的作用。患有复发性偏头痛的青少年及其家庭存在许多未满足的需求。对青少年、照顾者和临床医生的访谈提出了一些干预领域。

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