荷兰裔土耳其人、摩洛哥人和苏里南人参与血红蛋白病携带者筛查的态度和意愿。
The attitudes and intention to participate in hemoglobinopathy carrier screening in The Netherlands among individuals from Turkish, Moroccan, and Surinamese descent.
机构信息
Department of Child Health, Netherlands Organization for Applied Scientific Research (TNO), P.O. Box 2215, 2301 CE Leiden, The Netherlands.
Department of Life Style, Netherlands Organization for Applied Scientific Research (TNO), P.O. Box 2215, 2301 CE Leiden, The Netherlands.
出版信息
J Environ Public Health. 2013;2013:374831. doi: 10.1155/2013/374831. Epub 2013 Nov 17.
OBJECTIVE
To explore factors that influence intention to participate in hemoglobinopathy (HbP) carrier screening under Dutch subjects at risk, since HbP became more common in The Netherlands.
METHOD
Structured interviews with 301 subjects from Turkish, Moroccan, or Surinamese ethnicity.
RESULTS
Half of the participants were familiar with HbP, 27% with carrier screening. Only 55% correctly answered basic knowledge items. After balanced information, 83% percent of subjects express intention to participate in HbP carrier screening. Intention to participate was correlated with (1) anticipated negative feelings, (2) valuing a physician's advice, and (3) beliefs on significance of carrier screening. Risk perception was a significant determinant, while respondents were unaware of HbP as endemic in their country of birth. Respondents preferred screening before pregnancy and at cost < 50€.
CONCLUSION
These findings show the importance of informing those at risk by tailored health education. We propose easy access at no costs for those willing to participate in HbP carrier screening.
目的
在荷兰有风险的人群中探索影响血红蛋白病（HbP）携带者筛查意愿的因素，因为 HbP 在荷兰变得更为常见。
方法
对来自土耳其、摩洛哥或苏里南族裔的 301 名受试者进行结构化访谈。
结果
一半的参与者熟悉 HbP，27%的人了解携带者筛查。只有 55%的人正确回答了基础知识问题。在进行均衡信息传递后，83%的受试者表示愿意参加 HbP 携带者筛查。参与意愿与（1）预期的负面情绪、（2）重视医生的建议和（3）对携带者筛查意义的信念有关。风险感知是一个重要的决定因素，而受访者没有意识到 HbP 在他们的出生国是地方性疾病。受访者希望在怀孕前进行筛查，并愿意支付低于 50 欧元的费用。
结论
这些发现表明，通过量身定制的健康教育来告知有风险的人群非常重要。我们建议愿意参加 HbP 携带者筛查的人可以免费获得便捷的服务。
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