Zheng Qiao-Lan, Tian Qi, Hao Chun, Gu Jing, Lucas-Carrasco Ramona, Tao Jian-Ting, Liang Zuo-Yi, Chen Xin-Lin, Fang Ji-Qian, Ruan Jian-Hua, Ai Qiu-Xiang, Hao Yuan-Tao
Department of Medical Statistics and Epidemiology & Center for Health Informatics Research & Guangdong Key Laboratory of Medicine, Laboratory of Health Informatics, School of Public Health, Sun Yat-sen University, Guangzhou Guangdong, P,R, China.
Health Qual Life Outcomes. 2014 Feb 23;12:25. doi: 10.1186/1477-7525-12-25.
People with physical disability (PWPD) is the largest subgroup of people with disability (PWD) in China, but few studies have been conducted among this vulnerable population. The objective of this study was to investigate the level of quality of life (QoL), self-perceived quality of care and support (QOCS), severity of disability and personal attitude towards disability among people with physical disability in China, as well as to identify how QoL can be affected by severity of disability through QOCS and personal attitude towards disability among PWPD.
A cross-sectional study was conducted among 1,853 PWPD in Guangzhou, China. Data were collected on participants' QoL, QOCS, personal attitude towards disability and severity of disability. Structural equation modeling was used to examine the effects of the other variables on QoL.
Even with a mild disability (mean score:1.72), relatively low levels of QoL (mean score: 2.65- 3.22) and QOCS (mean score: 2.95 to 3.28), as well as unfavorable personal attitude towards disability (mean score: 2.75 to 3.36) were identified among PWPD. According to SEM, we found that the influence of severity of physical disability on QoL is not only exerted directly, but is also indirectly through QOCS and their personal attitudes towards disability, with QOCS playing a more important mediating role than PWPD's attitudes towards their own disability.
Unfavorable health status was identified among PWPD in China. Focusing on improvement of assistance and care services has the potential to substantially improve PWPD's QoL. Further research should focus on understanding the needs and their current state of health care of PWPD in China thus being able to develop better interventions for them.
身体残疾者是中国残疾人群体中最大的亚群体,但针对这一弱势群体的研究较少。本研究的目的是调查中国身体残疾者的生活质量(QoL)水平、自我感知的护理和支持质量(QOCS)、残疾严重程度以及对残疾的个人态度,同时确定身体残疾者的生活质量如何通过QOCS和对残疾的个人态度受到残疾严重程度的影响。
在中国广州对1853名身体残疾者进行了一项横断面研究。收集了参与者的生活质量、QOCS、对残疾的个人态度和残疾严重程度的数据。采用结构方程模型来检验其他变量对生活质量的影响。
即使是轻度残疾(平均得分:1.72),身体残疾者的生活质量(平均得分:2.65 - 3.22)和QOCS(平均得分:2.95至3.28)水平相对较低,并且对残疾持不利的个人态度(平均得分:2.75至3.36)。根据结构方程模型,我们发现身体残疾严重程度对生活质量的影响不仅直接产生,还通过QOCS及其对残疾的个人态度间接产生,其中QOCS发挥的中介作用比身体残疾者对自身残疾的态度更重要。
在中国身体残疾者中发现了不利的健康状况。专注于改善援助和护理服务有可能大幅提高身体残疾者的生活质量。进一步的研究应侧重于了解中国身体残疾者的需求及其当前的医疗保健状况,从而能够为他们制定更好的干预措施。