“我怎么还能是我自己？”：在神经系统疾病背景下维持自我意识的策略。
"How can I still be me?": Strategies to maintain a sense of self in the context of a neurological condition.
作者信息
Roger Kerstin, Wetzel Monika, Hutchinson Susan, Packer Tanya, Versnel Joan
机构信息
Department of Family Social Sciences, University of Manitoba, Winnipeg, Manitoba, Canada;
Department of Family Social Sciences, University of Manitoba, Winnipeg, Manitoba, Canada.
出版信息
Int J Qual Stud Health Well-being. 2014 Apr 11;9:23534. doi: 10.3402/qhw.v9.23534. eCollection 2014.
The Living with a Neurological Condition (LINC) study was part of the National Population Health Study of Neurological Conditions conducted in Canada. This article describes empirical original qualitative data collected in the third and final phase of this study and examines how individuals living with a neurological condition maintain continuity of their sense of self, with a particular focus on their strategies. Fifteen interviews were analysed for this paper. Emerging strategies for maintaining sense of self include: (1) avoidance and denial, (2) cognitive reframing, (3) articulation of the self through imagined positive identity, (4) strategies that reconnect to identity in the past, (5) adjusting and altering goals, (6) spiritual activities, (7) humour, (8) comparison with others: identity as shaped through social constructs, and (9) creating communities: a reciprocal reflection of self.
“与神经疾病共存”（LINC）研究是在加拿大开展的全国神经疾病人口健康研究的一部分。本文描述了在该研究的第三阶段（即最后阶段）收集的原始实证定性数据，并探讨了患有神经疾病的个体如何保持自我认同感的连续性，尤其关注他们所采用的策略。本文对15次访谈进行了分析。保持自我认同感的新出现的策略包括：（1）回避与否认；（2）认知重构；（3）通过想象积极身份来表达自我；（4）与过去身份重新建立联系的策略；（5）调整和改变目标；（6）精神活动；（7）幽默；（8）与他人比较：通过社会建构塑造身份；（9）创建社区：自我的相互映照。
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