Department of Gynaecological Oncology, St Bartholomew's Hospital, Barts Health NHS Trust, London, UK.
Florence Nightingale School of Nursing and Midwifery, Kings College London, UK.
Eur J Oncol Nurs. 2014 Aug;18(4):362-71. doi: 10.1016/j.ejon.2014.03.014. Epub 2014 May 1.
This paper reports on a phenomenological study of women's experiences 1-10 years following a radical vaginal trachelectomy and describes the impact on health, sexuality, fertility and perceived supportive care needs.
Qualitative telephone interviews employing a descriptive phenomenological approach were conducted using a purposive sample of 12 women.
Several felt their cancer experience was positive; bringing them closer to family and changed their outlook on life. A few experienced delayed psychological reactions and/or fears of recurrence. Many experienced isolation and the desire to contact others with similar experiences. Women recovered well but a few experienced fears/concerns about lymphoedema and intermenstrual bleeding. Sexual function was not a long-term issue for most. Some that could feel the cerclage (stitch) during intercourse, developed techniques to reduce this. Single women felt vulnerable in new relationships. Pregnancy was an anxious time, especially for those that experienced a miscarriage or pre-term birth. Sources of support included the clinical nurse specialist, family/friends, surgical consultant, online patient forums and a support group. Women needed more information on trachelectomy statistics, pregnancy care recommendations as well as access to counselling, peer support, being seen by the same person and increased public awareness.
This study has provided an interesting and detailed insight into women's experiences in the years following a trachelectomy, with results that have important considerations for practice such as provision of statistical information; counselling; peer support; consistent pregnancy recommendations; increased public awareness and increased identification and management or prevention of long-term physical effects.
本文报告了一项对 10 名接受根治性阴道子宫颈切除术的女性 1-10 年的生活体验进行的现象学研究，描述了对健康、性、生育和感知支持性护理需求的影响。
采用描述性现象学方法，对 12 名妇女进行了定性电话访谈，采用了目的性抽样。
一些女性认为她们的癌症经历是积极的，这使她们与家人更加亲近，并改变了她们的人生观。少数人经历了延迟的心理反应和/或对复发的恐惧。许多人感到孤立，渴望与有类似经历的人联系。大多数女性恢复良好，但少数人担心淋巴水肿和月经间期出血。大多数女性的性功能并不是长期问题。一些人在性交时能感觉到缝线（缝合线），并开发了减少这种感觉的技术。单身女性在新的关系中感到脆弱。怀孕是一个焦虑的时期，尤其是那些经历过流产或早产的女性。支持来源包括临床护士专家、家人/朋友、外科顾问、在线患者论坛和支持小组。女性需要更多关于子宫颈切除术统计数据、妊娠护理建议的信息，以及获得咨询、同伴支持、由同一人进行检查、提高公众意识的机会。
本研究深入了解了女性在接受子宫颈切除术几年后的生活体验，研究结果对实践具有重要意义，例如提供统计信息；咨询；同伴支持；一致的妊娠建议；提高公众意识以及增加对长期身体影响的识别、管理或预防。
