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一项描述性研究,评估加拿大3家机构围产期医疗服务提供者对姑息治疗规划的看法。

A descriptive study evaluating perinatal healthcare providers' perspectives of palliative programming in 3 Canadian institutions.

作者信息

Stenekes Simone J, Ens Carla D L, Harlos Michael, Chochinov Harvey Max, Mytopher Kristine

机构信息

Transition & Palliative Care, CancerCare Manitoba, Winnipeg, Manitoba, Canada (Ms Stenekes); Manitoba Health, Winnipeg, Manitoba, Canada (Dr Ens); Winnipeg Regional Health Authority Palliative Care Program, Winnipeg, Manitoba, Canada (Dr Harlos); Manitoba Palliative Care Research Unit, CancerCare Manitoba, Winnipeg, Manitoba, Canada (Dr Chochinov); and Department of Obstetrics, Gynecology and Reproductive Sciences, University of Saskatchewan, Saskatoon, Saskatchewan, Canada (Dr Mytopher).

出版信息

J Perinat Neonatal Nurs. 2014 Oct-Dec;28(4):280-9; quiz E1-2. doi: 10.1097/JPN.0000000000000020.

Abstract

A paucity of research has evaluated the perspectives of the broader healthcare team regarding perinatal palliative care. This study examines the views of healthcare providers involved in perinatal palliative care in 3 tertiary care hospitals in Canada. Developing an understanding of their perspectives of care provision, as well as the interactions that took place with families and other teams while providing perinatal palliative care, was of interest. Twenty-nine healthcare providers were involved in 4 focus groups and 5 individual interviews. Data were transcribed and content analysis was undertaken. The overarching theme of communication materialized from the data. Within this theme were 3 subthemes, each highlighting an aspect of communication that impacted care provision: connecting through proximity, protected time and dedicated space, and flexibility and formality. The study also describes a model of integrated perinatal palliative care program development and explains where each of the 3 sites falls along this continuum. The development of formal programs in these facilities is varied and recommendations are included to enhance communication and assist in providing improved and integrated programming.

摘要

鲜有研究评估更广泛的医疗团队对围产期姑息治疗的看法。本研究调查了加拿大3家三级护理医院中参与围产期姑息治疗的医疗服务提供者的观点。了解他们对护理提供的看法,以及在提供围产期姑息治疗时与家庭和其他团队的互动情况很有意义。29名医疗服务提供者参与了4个焦点小组和5次个人访谈。对数据进行了转录并开展了内容分析。数据中出现了沟通这一总体主题。在这个主题中有3个子主题,每个子主题都突出了影响护理提供的沟通的一个方面:通过亲近感建立联系、有保障的时间和专用空间,以及灵活性和正式性。该研究还描述了一个围产期姑息治疗综合项目开发模型,并解释了这3个地点在这个连续统一体中的位置。这些机构中正式项目的发展各不相同,并给出了相关建议,以加强沟通并协助提供更好的综合项目。

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