Gorski A M, Goulet O, Lamor M, Postaire M, Lalondrelle F, Corriol O, Cauchefer V, Nihoul-Fékété C, Revillon Y, Jan D
Centre Agréé de Nutrition Parentérale à domicile, Hôpital des Enfants-Malades, Paris.
Arch Fr Pediatr. 1989 May;46(5):323-9.
In cases where an anatomic or functional amputation of the small bowel dictates that parenteral nutrition needs to be prolonged, it is essential to offer the child the best possible quality of life. In this regard, being in his home environment is an important component. Over a 8 year-period (1980-1988), 88 children went home with cyclic parenteral nutrition. In 34, parental nutrition was eventually discontinued: 40 are still parenteral nutrition-dependent and 14 died. In most cases, the growth and quality of life were satisfactory. Complications consisted essentially of infections, with 1 septicemia for 692 days of home parenteral nutrition (HPN). In the light of these results, HPN appears to be the best option for prolonged parenteral nutrition-dependent children. However, it cannot be set up without the help of a suitable center able to follow the children and to ensure the logistic support necessary for this highly technical and demanding type of care.
在小肠进行解剖性或功能性切除后需要长期进行肠外营养的情况下,为患儿提供尽可能好的生活质量至关重要。在这方面,身处家庭环境是一个重要因素。在1980年至1988年的8年时间里,88名儿童带着周期性肠外营养回家。其中34名最终停止了肠外营养;40名仍依赖肠外营养,14名死亡。在大多数情况下,生长和生活质量令人满意。并发症主要为感染,居家肠外营养(HPN)692天出现1例败血症。鉴于这些结果,HPN似乎是长期依赖肠外营养儿童的最佳选择。然而,没有合适的中心提供帮助,无法开展HPN,该中心需要能够跟踪患儿并确保这种高技术要求且复杂的护理所需的后勤支持。