Kavanaugh Karen, Nantais-Smith Leanne M, Savage Teresa, Schim Stephanie Myers, Natarajan Girija
Neonatal Netw. 2014 Sep-Oct;33(5):255-62. doi: 10.1891/0730-0832.33.5.255.
To outline parents' descriptions of extended family involvement and support surrounding decision making for their extremely preterm infant.
Collective case study design in a prospective, descriptive, longitudinal research. Seventy-five digitally recorded interviews were done with parents before and after the birth.
Fifty-four parents (40 mothers, 14 fathers).
Categories of family involvement and support in the parents' decision making.
Most parents did not seek advice from family members for life-support decisions made prenatally. Instead, parents made the decision as a couple with their physician without seeking family input. Family members provided certain types of support: emotional support, advice and information, prayer, and instrumental help such as child care. Most parents described at least one way their family supported them. For postnatal and end-of-life decisions, parents were more likely to seek advice from extended family in addition to the other forms of support.
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