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探索居住在英国的中国女性的传统临终信念、价值观、期望和做法:为文化安全护理提供信息。

Exploring traditional end-of-life beliefs, values, expectations, and practices among Chinese women living in England: Informing culturally safe care.

作者信息

Fang Mei Lan, Malcoe Lorraine Halinka, Sixsmith Judith, Wong Louise Yuen Ming, Callender Matthew

机构信息

Gerontology Research Centre, Simon Fraser University,Vancouver,British Columbia,Canada.

Zilber School of Public Health, University of Wisconsin Milwaukee,Milwaukee,Wisconsin.

出版信息

Palliat Support Care. 2015 Oct;13(5):1261-74. doi: 10.1017/S1478951514001126. Epub 2014 Oct 27.

Abstract

OBJECTIVE

This study explores the end-of-life (EoL) beliefs, values, practices, and expectations of a select group of harder-to-reach Chinese women living in England.

METHOD

A cultural safety approach was undertaken to interpret 11 in-depth, semistructured interviews. Interviews were conducted in Mandarin and Cantonese. Transcripts were translated and back-translated by two researchers. Findings were analyzed using the technical analytical principles of grounded theory.

RESULTS

The key themes generated from our analysis include: acculturation; differential beliefs and norms in providing care: family versus health services; language and communication; Eastern versus Western spiritual practices and beliefs; and dying, death, and the hereafter.

SIGNIFICANCE OF RESULTS

End-of-life discussions can be part of an arduous, painful, and uncomfortable process, particularly for migrants living on the margins of society in a new cultural setting. For some Chinese people living in the United Kingdom, end-of-life care requires attention to acculturation, particularly Western versus Eastern beliefs on religion, spirituality, burial practices, and provision of care, and the availability of culturally specific care, all of which encompass issues related to gender. Stories of a purposive sample of Chinese women were viewed through a cultural safety lens to gain a deeper understanding of how social and cultural norms and expectations, in addition to the pressures of acculturation, impact gendered roles and responsibilities. The analysis revealed variations between/within Eastern and Western culture that resulted in pronounced, and oftentimes gendered, differences in EoL care expectations.

摘要

目的

本研究探讨了居住在英国的一群较难接触到的中国女性在生命末期的信仰、价值观、实践和期望。

方法

采用文化安全方法对11次深入的半结构化访谈进行解读。访谈以普通话和粤语进行。访谈记录由两名研究人员进行翻译和回译。研究结果运用扎根理论的技术分析原则进行分析。

结果

我们分析得出的关键主题包括:文化适应;提供护理方面的不同信仰和规范:家庭与医疗服务;语言与沟通;东西方的精神实践和信仰;以及临终、死亡和来世。

结果的意义

临终讨论可能是一个艰巨、痛苦且令人不适的过程的一部分,尤其是对于生活在新文化环境中社会边缘的移民而言。对于一些生活在英国的中国人来说,临终护理需要关注文化适应,特别是东西方在宗教、灵性、丧葬习俗和护理提供方面的信仰差异,以及提供具有文化特异性的护理,所有这些都涉及与性别相关的问题。通过文化安全视角审视了一组有目的抽样的中国女性的故事,以更深入地了解社会文化规范和期望,以及文化适应压力如何影响性别角色和责任。分析揭示了东西方文化之间/内部的差异,这些差异导致了临终护理期望方面明显的、且往往与性别相关的差异。

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